Table 1 List of the routine primary care data collection projects
Project name or network associated with the database | Country of origin | PubMed occurrence (ref) | Official website (ref) |
|---|---|---|---|
Geographical and Resource Analysis in Primary Health Care (GRAPHC) | Australia | 1 [48] | [49] |
Canning Division of General Practice in Western Australia project | Australia | 1 [50] | No website |
Melbourne East General Practice Network in Victoria project (MEGPN) | Australia | 1 [17] | [27] |
Local initiative: three general practices | Australia | 1 [51] | No website |
Intego Project | Belgium | [54] | |
National Scale Routine Data Collection Network (NIHDI) | Belgium | 1 [23] | No website |
Canadian Primary Care Sentinel Surveillance Network (CPCSSN) | Canada | [24] | |
Deliver Primary Healthcare Information (DELPHI) | Canada | [24] | |
Electronic Medical Record Administrative Data Linked Database (EMRALD) | Canada | [74] | |
One community health center – local experiment | Canada | 1 [18] | No website |
Longitudinal Patient Data Network - Cegedim© | France | 1 [8] | Commercial website |
Cegedim© Strategic Data - Longitudinal Patient Database (CSD) | Italy | [77] | |
TransHIS - TRANSFoRm Project - Translational Research and Patient Safety in Europe | Malta | 1 [78] | [79] |
TransHIS – TRANSFoRm Project - Translational Research and Patient Safety in Europe | Netherlands | 1 [78] | [79] |
Integrated Primary Care Information Project (IPCI) | Netherlands | [29] | |
Nivel: Primary Care Database (NIVEL-PCD) and LINH Database (Netherlands Information Network of General Practice) | Netherlands | [41] | |
Julius Clinical Primary Care Research Network (JPCRN) | Netherlands | 1 [87] | [39] |
Registration Network Family Practices (RNH) | Netherlands | 1 [88] | [89] |
SIDIAP, Information System for the Development of Primary Care Research | Spain | [92] | |
Electronic Clinical Record in Primary Care from Madrid | Spain | 1 [93] | No website |
BIFAP, Database for Pharmacoepidemiology | Spain | 1 [94] | [95] – (website excluded because written in Spanish) |
Swedestar, EHR system for primary care | Sweden | 1 [96] | No website |
Family Medicine ICPC-Research using Electronic Medical Records (FIRE project) | Switzerland | 1 [97] | [98] –(website excluded because written in German) |
Clinical Practice Research Datalink (CPRD) or General Practice Research Database (GPRD) | United Kingdom | 38 [10, 40, 99,100,101,102,103,104,105,106,107,108,109,110,111,112,113,114,115,116,117,118,119,120,121,122,123,124,125,126,127,128,129,130,131,132,133,134] | [15] |
The Health Improvement Network (THIN) | United Kingdom | [16] | |
Q Research | United Kingdom | 1 [11] | [42] |
Local initiatives or uncompleted project, i.e. General Practice Extraction Service | United Kingdom | No website | |
Veterans Administration – Corporate Data Warehouse | United States- Several states | [28] | |
Geisinger© Health System Project | United States- Several states | [30] | |
General Electric© Centricity Electronic Medical Records Research Database | United States- Several states | Commercial website | |
OCHIN, Inc. Oregon Community Health Information Network | United States - Several states | 1 [22] | [165] |
Baylor Health Care System (BHCS) and Christiana Care Health System (CCHS) | United States | 1 [166] | [167] |
University of California Davis Health System Electronic Medical Record System | United States – California | 1 [168] | [169] |
CHCI, Community Health Center, Inc. | United States – Connecticut | 1 [170] | [171] |
Massachusetts General Physicians Organization, MGPO | United States –Massachusetts | 1 [19] | [172] |
4-site federally qualified CHC, Open Door Family Medical Centers (Open Door), located in New York | United States – New York | 1 [173] | [174] |
New York City Primary Care Information Project | United States –New York | 1 [21] | [175] |
Institute for Family Health (IFH) | United States – New York area | 1 [20] | [176] |
Isolated initiative: Dallas (Texas) | United States – Texas | 1 [177] | No website |
University of Wisconsin Department of Family Medicine Clinical Data Warehouse | United States – Wisconsin | Unavailable website | |
University of Wisconsin Electronic Health Record - Public Health Information Exchange (UW eHealth - PHINEX) | 1 [33] |