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Table 1 List of the routine primary care data collection projects

From: Factors influencing the development of primary care data collection projects from electronic health records: a systematic review of the literature

Project name or network associated with the database Country of origin PubMed occurrence (ref) Official website (ref)
Geographical and Resource Analysis in Primary Health Care (GRAPHC) Australia 1 [48] [49]
Canning Division of General Practice in Western Australia project Australia 1 [50] No website
Melbourne East General Practice Network in Victoria project (MEGPN) Australia 1 [17] [27]
Local initiative: three general practices Australia 1 [51] No website
Intego Project Belgium 2 [52, 53] [54]
National Scale Routine Data Collection Network (NIHDI) Belgium 1 [23] No website
Canadian Primary Care Sentinel Surveillance Network (CPCSSN) Canada 13 [36, 55,56,57,58,59,60,61,62,63,64,65,66] [24]
Deliver Primary Healthcare Information (DELPHI) Canada 2 [25, 67] [24]
Electronic Medical Record Administrative Data Linked Database (EMRALD) Canada 10 [34, 35, 37, 62, 68,69,70,71,72,73] [74]
One community health center – local experiment Canada 1 [18] No website
Longitudinal Patient Data Network - Cegedim© France 1 [8] Commercial website
Cegedim© Strategic Data - Longitudinal Patient Database (CSD) Italy 3 [38, 75, 76] [77]
TransHIS - TRANSFoRm Project - Translational Research and Patient Safety in Europe Malta 1 [78] [79]
TransHIS – TRANSFoRm Project - Translational Research and Patient Safety in Europe Netherlands 1 [78] [79]
Integrated Primary Care Information Project (IPCI) Netherlands 5 [38, 76, 80,81,82] [29]
Nivel: Primary Care Database (NIVEL-PCD) and LINH Database (Netherlands Information Network of General Practice) Netherlands 4 [83,84,85,86] [41]
Julius Clinical Primary Care Research Network (JPCRN) Netherlands 1 [87] [39]
Registration Network Family Practices (RNH) Netherlands 1 [88] [89]
SIDIAP, Information System for the Development of Primary Care Research Spain 3 [90,91,92] [92]
Electronic Clinical Record in Primary Care from Madrid Spain 1 [93] No website
BIFAP, Database for Pharmacoepidemiology Spain 1 [94] [95] – (website excluded because written in Spanish)
Swedestar, EHR system for primary care Sweden 1 [96] No website
Family Medicine ICPC-Research using Electronic Medical Records (FIRE project) Switzerland 1 [97] [98] –(website excluded because written in German)
Clinical Practice Research Datalink (CPRD) or General Practice Research Database (GPRD) United Kingdom 38 [10, 40, 99,100,101,102,103,104,105,106,107,108,109,110,111,112,113,114,115,116,117,118,119,120,121,122,123,124,125,126,127,128,129,130,131,132,133,134] [15]
The Health Improvement Network (THIN) United Kingdom 12 [11, 135,136,137,138,139,140,141,142,143,144,145] [16]
Q Research United Kingdom 1 [11] [42]
Local initiatives or uncompleted project, i.e. General Practice Extraction Service United Kingdom 6 [146,147,148,149,150,151] No website
Veterans Administration – Corporate Data Warehouse United States- Several states 8 [152,153,154,155,156,157,158,159] [28]
Geisinger© Health System Project United States- Several states 3 [160,161,162] [30]
General Electric© Centricity Electronic Medical Records Research Database United States- Several states 2 [163, 164] Commercial website
OCHIN, Inc. Oregon Community Health Information Network United States - Several states 1 [22] [165]
Baylor Health Care System (BHCS) and Christiana Care Health System (CCHS) United States 1 [166] [167]
University of California Davis Health System Electronic Medical Record System United States – California 1 [168] [169]
CHCI, Community Health Center, Inc. United States – Connecticut 1 [170] [171]
Massachusetts General Physicians Organization, MGPO United States –Massachusetts 1 [19] [172]
4-site federally qualified CHC, Open Door Family Medical Centers (Open Door), located in New York United States – New York 1 [173] [174]
New York City Primary Care Information Project United States –New York 1 [21] [175]
Institute for Family Health (IFH) United States – New York area 1 [20] [176]
Isolated initiative: Dallas (Texas) United States – Texas 1 [177] No website
University of Wisconsin Department of Family Medicine Clinical Data Warehouse United States – Wisconsin 2 [178, 179] Unavailable website
University of Wisconsin Electronic Health Record - Public Health Information Exchange (UW eHealth - PHINEX) 1 [33]