World Health Organisation: Dementia: a public health priority. 2012, [http://www.who.int/mental_health/publications/dementia_report_2012/en/]
Google Scholar
Lancet Neurology: Public health planning for dementia must start now. Lancet Neurol. 2012, 11: 477-10.1016/S1474-4422(12)70120-5.
Article
Google Scholar
American Psychiatric Association: Diagnostic and statistical manual of mental disorders. 2013, Washington DC: American Psychiatric Association, 5
Google Scholar
Blass DM, Rabins PV: Dementia: in the clinic. Ann Intern Med. 2008, 148: 1-16. 10.7326/0003-4819-148-1-200801010-00002.
Article
Google Scholar
Breen DA, Breen DP, Moore JW, Breen PA, O’Neill D: Driving and dementia. BMJ. 2007, 334: 1365-1369. 10.1136/bmj.39233.585208.55.
Article
PubMed
PubMed Central
Google Scholar
Carr DB, Shead V, Storandt M: Driving cessation in older adults with dementia of the Alzheimer’s type. Gerontologist. 2005, 45: 824-827. 10.1093/geront/45.6.824.
Article
PubMed
Google Scholar
Herrmann N, Rapoport MJ, Sambrook R, Hebert R, McCracken P, Robillard A: Predictors of driving cessation in mild to moderate dementia. CMAJ. 2006, 175: 591-595. 10.1503/cmaj.051707.
Article
PubMed
PubMed Central
Google Scholar
Martin AJ, Marottoli R, O’Neill D: Driving assessment for maintaining mobility and safety in drivers with dementia. Cochrane Database Syst Rev. 2009, 1: CD006222
Google Scholar
Eby DW, Molnar LJ: Driving fitness and cognitive impairment: issues for physicians. JAMA. 2010, 303: 1642-1643. 10.1001/jama.2010.495.
Article
CAS
PubMed
Google Scholar
Department for transport: National travel survey 2011. [https://www.gov.uk/government/publications/national-travel-survey-2011]
Federal Highway Administration, US Department of Transport: Distribution of licensed drivers 1993. [http://www.fhwa.dot.gov/ohim/hs93/Sec3.pdf]
Federal Highway Administration, US Department of Transport: Distribution of licensed drivers 2011. [http://www.fhwa.dot.gov/policyinformation/statistics/2011/]
Edwards JD, Bart E, O’Connor ML, Cissell G: Ten years down the road: predictors of driving cessation. Gerontologist. 2010, 50: 393-399. 10.1093/geront/gnp127.
Article
PubMed
Google Scholar
Buys L, Snow S, van Megen K, Miller E: Transportation behaviours of older adults: an investigation into car dependency in urban Australia. Australas J Ageing. 2012, 31: 181-186. 10.1111/j.1741-6612.2011.00567.x.
Article
PubMed
Google Scholar
Snyder CH: Dementia and driving: autonomy versus safety. J Am Acad Nurse Pract. 2005, 17: 393-402. 10.1111/j.1745-7599.2005.00070.x.
Article
PubMed
Google Scholar
Drazkowski JF, Sirven JI: Driving and neurologic disorders. Neurology. 2011, 76 (Suppl 2): 44-49.
Article
Google Scholar
Musselwhite C, Haddad H: Mobility, accessibility and quality of later life. Qual Ageing. 2010, 11: 25-37.
Article
Google Scholar
Kostyniuk LP, Shope JT: Driving and alternatives: older drivers in Michigan. J Safety Res. 2003, 34: 407-414. 10.1016/j.jsr.2003.09.001.
Article
PubMed
Google Scholar
Marottoli RA, de Leon CF M, Glass TA, Williams CS, Cooney LM, Berkman LF: Driving cessation and increased depressive symptoms: prospective evidence from the New Haven EPESE. J Am Geriatr Soc. 1997, 45: 202-206.
Article
CAS
PubMed
Google Scholar
Taylor BD, Tripodes S: The effects of driving cessation on the elderly with dementia and their caregivers. Accid Anal Prev. 2001, 33: 519-528. 10.1016/S0001-4575(00)00065-8.
Article
CAS
PubMed
Google Scholar
Freeman EE, Gange SJ, Munoz B, West SK: Driving status and risk of entry into long-term care in older adults. Am J Public Health. 2006, 96: 1254-1259. 10.2105/AJPH.2005.069146.
Article
PubMed
PubMed Central
Google Scholar
Berger JT, Rosner F: Ethical challenges posed by dementia and driving. J Clin Ethics. 2000, 11: 304-308.
CAS
PubMed
Google Scholar
Brown LB, Ott BR: Driving and dementia: a review of the literature. J Geriatr Psychiatry Neurol. 2004, 17: 232-240. 10.1177/0891988704269825.
Article
PubMed
PubMed Central
Google Scholar
Carmody J, Traynor V, Iverson D, Marchetti E: Driving, dementia and the Australian physician: primum non nocere. Intern Med J. 2013, 43: 625-630. 10.1111/imj.12161.
Article
CAS
PubMed
Google Scholar
O’Neill D: Driving and dementia. CMAJ. 2007, 176: 351-
Article
PubMed
PubMed Central
Google Scholar
O’Neill D: Deciding on driving cessation and transport planning in older drivers with dementia. Eur Geriatr Med. 2010, 1: 22-25. 10.1016/j.eurger.2010.01.001.
Article
Google Scholar
Carmody J, Traynor V, Iverson D: Dementia and driving: an approach for general practice. Aust Fam Physician. 2012, 41: 230-233.
PubMed
Google Scholar
Carmody J, Traynor V, Iverson D: Fitness to drive: letter of reply. Aust Fam Physician. 2012, 41: 459-460.
Google Scholar
Carr DB, Schwartzberg JG, Manning L, Sempek J: Physician’s guide to assessing and counseling older drivers. 2010, Washington, DC: National Highway Traffic Safety Administration, 2
Google Scholar
Iverson DJ, Gronseth GS, Reger MA, Classen S, Dubinsky RM, Rizzo M: Practice parameter update: evaluation and management of driving risk in dementia. Report of the Quality Standards Subcommittee of the American Academy of Neurology. Neurology. 2010, 74: 1316-1324. 10.1212/WNL.0b013e3181da3b0f.
Article
CAS
PubMed
PubMed Central
Google Scholar
Drickamer MA, Marottoli RA: Physician responsibility in driver assessment. Am J Med Sci. 1993, 306: 277-281. 10.1097/00000441-199311000-00001.
Article
CAS
PubMed
Google Scholar
Carmody J, Granger J, Lewis K, Traynor V, Iverson D: What factors delay driving retirement by individuals with dementia?: the doctors’ perspectives. J Australas Coll Road Saf. 2013, 24: 10-16.
Google Scholar
Jang RW, Man-Son-Hing M, Molnar FJ, Hogan DB, Marshall SC, Auger J, Graham ID, Korner-Bitensky N, Tomlinson G, Kowgier ME, Naglie G: Family physicians’ attitudes and practices regarding assessments of medical fitness to drive in older persons. J Gen Intern Med. 2007, 22: 531-543. 10.1007/s11606-006-0043-x.
Article
PubMed
PubMed Central
Google Scholar
Ropper AH, Samuels MA: Dementia and the amnesic (Korsakoff) syndrome with comments on the neurology of intelligence and memory. Adams and Victor’s Principles of Neurology. 2009, New York: McGraw-Hill, 9
Google Scholar
Howe EG: Improving treatments for patients who are elderly and have dementia. J Clin Ethics. 2000, 11: 291-303.
CAS
PubMed
Google Scholar
O’Connor AM, Jacobsen M, Stacey D: An evidence-based approach to managing women’s decisional conflict. J Obstet Gynaecol Neonatal Nurs. 2002, 31: 570-581. 10.1111/j.1552-6909.2002.tb00083.x.
Article
Google Scholar
Prunty MC, Sharpe L, Butow P, Fulcher G: The motherhood choice: a decision aid for women with multiple sclerosis. Patient Educ Couns. 2008, 71: 108-115. 10.1016/j.pec.2007.10.021.
Article
PubMed
Google Scholar
Feldman-Stewart D, Brennenstuhl S, McIssac K, Austoker J, Charvet A, Hewitson P, Sepucha KR, Whelan T: A systematic review of information in decision aids. Health Expect. 2007, 10: 46-61. 10.1111/j.1369-7625.2006.00420.x.
Article
PubMed
Google Scholar
O’Connor AM, Tugwell P, Wells GA, Elmslie T, Jolly E, Hollingworth G, McPherson R, Bunn H, Graham I, Drake E: A decision aid for women considering hormone replacement therapy after menopause: decision support framework and evaluation. Patient Educ Couns. 1998, 33: 267-279. 10.1016/S0738-3991(98)00026-3.
Article
PubMed
Google Scholar
Stacey D, Légaré F, Col NF, Bennett CL, Barry MJ, Eden KB, Holmes-Rovner M, Llewellyn-Thomas H, Lyddiatt A, Thomson R, Trevena L, Wu JHC: Decision aids for people facing health treatment or screening decisions. Cochrane Database Syst Rev. 2014, 10: CD001431
Google Scholar
Bensing J, Rimondini M, Visser A: What patients want. Pat Educ Counsel. 2013, 90: 287-290. 10.1016/j.pec.2013.01.005.
Article
Google Scholar
O’Connor AM: Ottawa decision support framework to address decisional conflict. 2006, [https://decisionaid.ohri.ca/docs/develop/ODSF.pdf]
Google Scholar
Stirling C, Leggett S, Lloyd B, Scott J, Blizzard L, Quinn S, Robinson A: Decision aids for respite service choices by carers of people with dementia: development and pilot RCT. BMC Med Inform Decis Mak. 2012, 12: 21-10.1186/1472-6947-12-21.
Article
PubMed
PubMed Central
Google Scholar
Hanson LC, Carey TS, Caprio AJ, Lee TJ, Ersek M, Garrett J, Jackman A, Gilliam R, Wessell K, Mitchell SL: Improving decision-making for feeding options in advanced dementia: a randomized, controlled trial. J Am Geriatr Soc. 2011, 59: 2009-2016. 10.1111/j.1532-5415.2011.03629.x.
Article
PubMed
PubMed Central
Google Scholar
O’Connor AM, Stacey D: Ottawa personal decision guide. 2012, [http://decisionaid.ohri.ca/docs/das/OPDG.pdf]
Google Scholar
National Health and Medical Research Council (NHMRC): How to prepare and present evidence-based information for consumers of health services: a literature review. 1999, Canberra: NHMRC, [http://www.nhmrc.gov.au/guidelines/publications/cp72]
Google Scholar
Elwyn G, O’Connor AM, Stacey D, Volk R, Edwards A, Coulter A, Thomson R, Barratt A, Barry M, Bernstein S, Butow P, Clarke A, Entwistle V, Feldman-Stewart D, Holmes-Rovner M, Llewellyn-Thomas H, Moumjid N, Mulley A, Ruland C, Sepucha K, Sykes A, Whelan T: Developing a quality criteria framework for patient decision aids: online international Delphi consensus process. BMJ. 2006, 333: 417-422. 10.1136/bmj.38926.629329.AE.
Article
PubMed
PubMed Central
Google Scholar
Andrew C, Traynor V, Iverson D: Dementia and retirement from driving: people with dementia and their carers critique available tools. 2011, [http://ro.uow.edu.au/cgi/viewcontent.cgi?article=2222&context=hbspapers]
Google Scholar
Butow P, Brindle E, McConnell D, Boakes R, Tattersall M: Information booklets about cancer: factors influencing patient satisfaction and utilization. Patient Educ Couns. 1998, 33: 129-141. 10.1016/S0738-3991(97)00071-2.
Article
CAS
PubMed
Google Scholar
Hibbard JH, Peters E: Supporting informed consumer health care decisions: data presentation approaches that facilitate the use of information in choice. Annu Rev Public Health. 2003, 24: 413-433. 10.1146/annurev.publhealth.24.100901.141005.
Article
PubMed
Google Scholar
Ottawa Hospital Research Institute: Decision aid library inventory. [http://decisionaid.ohri.ca/cochinvent.php]
O’Connor AM: Low literacy decisional conflict scale. [https://decisionaid.ohri.ca/eval_dcs.html]
Smith SK, Trevena L, Simpson JM, Barratt A, Nutbeam D, McCaffery KJ: A decision aid to support informed choices about bowel cancer screening among adults with low education: randomized controlled trial. BMJ. 2010, 341: c5370-10.1136/bmj.c5370.
Article
PubMed
PubMed Central
Google Scholar
O’Connor AM: Ottawa knowledge questionnaire. [http://decisionaid.ohri.ca/eval_know.html]
Holmes-Rovner M, Kroll J, Schmitt N, Rovner DR, Breer ML, Rothert ML, Padonu G, Talarczyk G: Patient satisfaction with health care decisions: the satisfaction with decision scale. Med Decis Making. 1996, 16: 58-64. 10.1177/0272989X9601600114.
Article
CAS
PubMed
Google Scholar
O’Connor AM, Cranney A: Ottawa acceptability questionnaire. [http://decisionaid.ohri.ca/eval_accept.html]
Taylor JS, DeMers SM, Vig EK, Borson S: The disappearing subject: exclusion of people with cognitive impairment and dementia from geriatrics research. J Am Geriatr Soc. 2012, 60: 413-419. 10.1111/j.1532-5415.2011.03847.x.
Article
PubMed
Google Scholar
Zulman DM, Sussman JB, Chen X, Cigolle CT, Blaum CS, Hayward RA: Examining the evidence: a systematic review of the inclusion and analysis of older adults in randomized controlled trials. J Gen Intern Med. 2011, 26: 783-790. 10.1007/s11606-010-1629-x.
Article
PubMed
PubMed Central
Google Scholar
Elwyn G, O’Connor AM, Bennett C, Newcombe RG, Politi M, Durand MA, Drake E, Joseph-Williams N, Khangura S, Saarimaki A, Sivell S, Stiel M, Bernstein SJ, Col N, Coulter A, Eden K, Härter M, Rovner MH, Moumjid N, Stacey D, Thomson R, Whelan T, van der Weijden T, Edwards A: Assessing the quality of decision support technologies using the International Patient Decision Aid Standards instrument (IPDASi). Plos One. 2009, 4: e4705-10.1371/journal.pone.0004705.
Article
PubMed
PubMed Central
Google Scholar
Wilcock J, Bryans M, Turner S, O’Carroll R, Keady J, Levin E, Iliffe S: Methodological problems in dementia research in primary care: a case study of a randomized controlled trial. Prim Health Care Res Dev. 2007, 8: 12-21. 10.1017/S1463423607000035.
Article
Google Scholar
Iliffe S, Curry L, Kharicha K, Rait G, Wilcock J, Lowery D, Tapuria A, Kalra D, Ritchie C: Developing a dementia research registry: a descriptive case study from North Thames DeNDRoN and the EVIDEM programme. BMC Med Res Methodol. 2011, 11: 9-10.1186/1471-2288-11-9.
Article
PubMed
PubMed Central
Google Scholar
Carr DB, Ott BR: The older adult driver with cognitive impairment: "it’s a very frustrating life". JAMA. 2010, 303: 1632-1641. 10.1001/jama.2010.481.
Article
CAS
PubMed
PubMed Central
Google Scholar