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Table 2 Caregiver feedback on acceptability of the implementation of YC-PEM e-PRO

From: Pilot implementation of an electronic patient-reported outcome measure for planning and monitoring participation-focused care in early intervention

 

Areas of Support

Areas of Concern

Relevance

· Helped me to reflect on my child’s participation, including strengths, challenges, and priorities (n = 16)

· Helped to think about our helpful strategies and possible new strategies (n = 6)

· Gave us ideas for activities to participate in (n = 5)

· It helped by breaking down the day to day activities that are sometimes forgotten about (n = 4)

· Helped me to think about the impact of the environment (n = 3)

· Felt like some questions did not fit our child’s disability and/or young age (n = 15)

· It did not fit our family situation (e.g., foster parent) and/or focus (e.g., we did not desire any change) (n = 10)

· Hard to learn from it or relate it to daily life (n = 6)

Wording

· Straightforward questions (n = 1)

· Detailed questions (n = 1)

· Wording of some questions was difficult to understand (n = 13)

Structure

· Good choice of questions (n = 2)

· Specificity level of the activities was helpful (n = 1)

· Questions were thorough (n = 1)

· Some questions and/or their response options were overwhelming or difficult to answer (n = 10)

  1. Abbreviation: YC-PEM e-PRO Young Children’s Participation and Environment Measure electronic patient-reported outcome