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Table 1 Demographic characteristics of participants who participated in the stakeholder engagement meeting (Step 2) and alpha testing (Step 4)

From: The "Begin Exploring Fertility Options, Risks and Expectations" (BEFORE) decision aid: development and alpha testing of a fertility tool for premenopausal breast cancer patients

Demographic Characteristics

Stakeholder Engagement Meeting (n = 28)

Alpha Testing (n = 17)

Type of Stakeholder

 Reproductive Endocrinology and Fertility Specialist

4

1

 General Surgeon (Specializing in Breast Cancer)

2

–

 Medical Oncologist

3

3

 Registered Nurse

2

–

 Social Worker

1

–

 General Practitioner

–

2

 Decision Aid Expert

2

–

 Patient Education Specialist

1

–

 Breast Cancer Survivor

8

10

 Cancer Organization and Advocate Representatives

5

–

 Cancer Survivorship Expert

–

1

Location (All Stakeholders)

 Ontario

21

12

 British Columbia

4

3

 Québec

1

1

 Alberta

1

–

 Saskatchewan

–

1

 Newfoundland

1

–

Hospital Setting (Health Care Providers)

 Community

3

3

 Academic

9

4

Children Prior to Cancer Diagnosis (Survivors)

 Yes

–

3

 No

–

6

 Unknown (did not provide answer)

–

1

Relationship Status at Diagnosis (Survivors)

 Married

–

4

 Long-Term Relationship

–

3

 Single

–

2

 Unknown (did not provide answer)

–

1

Self-Identified Ethnicity/ Race (Survivors)

 Filipino

–

1

 Hispanic

–

1

 East Indian

–

1

 White

–

2

 Persian/Iranian

–

1

 African Canadian

–

1

 Chinese/Portuguese

–

1

 Unknown (did not provide answer)

–

2

Education (Survivors)

 Some College or Post High School Training

–

2

 Post-Secondary

–

1

 Graduate Level Studies/Professional Degree

–

5

 Unknown (did not provide answer)

–

2

Age Range at Diagnosis (Survivors)

–

21 to 43