Table 1 Expert-panel conceptualized UrApp functions and the nephrotic syndrome tasks and Chronic Care Model elements they support
Function | Nephrotic Syndrome Management Task | Chronic Care Model Element |
|---|---|---|
a) Urine test strip camera read | Automatic reading of urine protein square on test strip to support visual interpretation of the test result | • Self-management support: provides basic information; facilitates disease assessment; emphasizes patient’s central role in care |
b) Alerts for significant urine protein findings | Automatic tracking and analysis of urine protein trends to support: results recall, analysis of clinically meaningful changes in results (relapse, remission), and decision-making on when to contact physicians and how often to perform urine testing | • Self-management support: provides basic information; facilitates disease assessment; emphasizes patient’s central role in care |
• Clinical information systems: provide timely reminders for patients; summarizes data; shares information with patients | ||
c) Transmission of urine protein results | Facilitates communication with providers to reduce burden and provide results documentation | • Clinical information systems: identifies subpopulations for proactive care; facilitates individual patient care planning; shares information with providers to coordinate care |
• Delivery system design: plans interactions and follow-up individualized to disease severity | ||
d) Urine protein documentation with graphic display | Summary displays of urine protein test results with color-coding in both graphic and calendar format promotes understanding of urine protein trends and supports result documentation | • Self-management support: provides basic information; facilitates disease assessment |
• Clinical information systems: summarizes data, shares information with patients | ||
e) Education materials | Documents and videos on relevant disease management information helps families understand disease and treatment complications and how to monitor for them, follow disease-specific diets, how to perform urine testing | • Self-management support: provides basic information; emphasizes patient’s central role in care; organizes resources to provide ongoing support |
• Decision support: shares information with patients to encourage their participation | ||
f) Medication and urine testing reminders | Reminders support adherence and accuracy with medication and urine testing. | • Clinical information systems: provides timely reminders for patients |
• Self-management support: provides strategies to increase medication and urine testing adherence |