Security and privacy requirements for a multi-institutional cancer research data grid: an interview-based study

Table 6 Which elements should be included in the trust agreements?

Element of Trust Agreement	Yes		No		Unsure
	Count	%	Count	%	Count	%
Integrity Protections	7	87.5	0	0	1	12.5
Assurance that staff will receive training including on privacy and security	8	88.9	1	11.1	0	0.0
Agreement to participate in defined security incident response policies	9	100.0	0	0.0	0	0.0
Statements that users will not re-identify	10	100.0	0	0.0	0	0.0
Statements that users will not use data for any other purpose	10	100.0	0	0.0	0	0.0
Liability Allocation	8	80.0	1	10.0	1	10.0
Indemnification	5	71.4	1	14.3	1	14.3
Penalties for breaching terms of agreement	8	88.9	1	11.1	0	0.0

Scenario 2 – Question 16. A total of 10 interviews provided responses. However not all respondents considered themselves sufficiently expert to determine the importance of inclusion of specific items, hence the denominator of the table varies by item between 7 and 10. Respondents included university and IRB legal counsels, IRB directors, Office of Research representatives, and Privacy and Compliance officers. Data was aggregated with interview statement as the unit of analysis.

ISSN: 1472-6947