Table 2 Booklet Improvements based on formative evaluation
From: Evidence-based patient choice: a prostate cancer decision aid in plain language
Information item identified in focus groups and approved by investigators | Draft 1 | Draft 2 |
|---|---|---|
Emotional impact | None | Hearing that you have prostate cancer may shock or frighten you, your family, and your friends. These feelings are natural. They may change over time, as you learn about your diagnosis, make treatment decisions, deal with symptoms, and go on with your life. Men are often afraid to share their feelings or get help from a counselor if needed. If strong feelings are hurting you or your family, ask your doctor to suggest help. |
Positive and negative framing | "If 45 men out of 100 experience impotence, this means that 55 do not." | "...about 45 men out of 100 have permanent impotence. This means that 55 men out of 100 will have their original level of sexual activity." |
African American differences | None | "African American men are often diagnosed at a younger age than white men and with more advanced prostate cancer. However, treatment may be equally successful for both groups if given the same care." |
Specific drug name, | "like Viagra" | "medicine that helps with erections" |
Treatment detail | No mention of cryosurgery or nerve-sparing surgery | Included under "newer treatments". |
Drawing | Three inset pictures | Only two |
Watchful Waiting description | Few disadvantages listed | Added disadvantages regarding potential progression of disease |