Development of a decision aid to inform patients’ and families’ renal replacement therapy selection decisions

Table 2 Participant characteristics for handbook development Stage 2 (Phases 1 and 2)

Patient characteristics, n(%)	All participants (Phases 1 & 2)	Phase 1 participants	Phase 2 participants
Patient characteristics, n(%)	(n=48)	(n=12)	(n=36)
Age
Mean [Range]	59 [33–85]	58 [46–71]	60 [33–85]
Gender
Male	24 [50%]	8 [67%]	16 [44%]
Race/Ethnicity
African American	41 [85%]	11 [92%]	30 [83%]
non-African American	7 [15%]	1 [8%]	6 [17%]
Education
Less than a high school degree	9 [19%]	4 [33%]	5 [14%]
High school degree/GED	17 [35%]	5 [42%]	12 [33%]
Some college	14 [29%]	3 [25%]	11 [31%]
Bachelor’s degree	6 [13%]	0 [0%]	6 [17%]
Graduate or professional school	2 [4%]	0 [0%]	2 [5%]
Treatment Group
Pre-ESRD	15 [31%]	3 [25%]	12 [33%]
Hemodialysis	22 [46%]	9 [75%]	13 [54%]
Home Hemodialysis	4 [8%]	---	4 [17%]
Peritoneal Dialysis	7 [15%]	---	7 [29%]
Knowledge of Kidney Disease ^§
Extensive knowledge	4 [8%]	1 [8%]	3 [8%]
A great deal of knowledge	20 [42%]	4 [33%]	16 [44%]
Some knowledge	18 [38%]	7 [59%]	11 [31%]
Limited to no knowledge	5 [10%]	0 [0%]	5 [14%]
Don’t know	1 [2%]	0 [0%]	1 [3%]
Literacy
3^rd grade and below	5 [10%]	1 [8%]	5 [14%]
4th to 6^th grade	4 [8%]	2 [17%]	2 [5%]
7^th to 8^th grade	14 [29%]	6 [50%]	8 [22%]
9^th grade and above	25 [52%]	3 [25%]	22 [61%]
Numeracy
Risk numerate^€	14 [30%]	3 [25%]	11 [31%]
Cognition ^¥
Cognitive impairment	10 [21%]	3 [25%]	7 [19%]

^§ Based on self-report.
^¥ Time of 273 seconds or longer indicates a cognitive deficiency, 2 participants missing data from Phase 2.
^€Considered risk numerate if 3 of 3 risk numeracy questions answered correctly, 1 participant missing from Phase 2.

ISSN: 1472-6947