Table 1 Topics addressed in the decision aid
Concern | Factor | Video | Handbook |
|---|---|---|---|
Morbidity/Mortality | Living longer | ||
(“Health Problems”) | Infections | · | · |
Complications with surgery | · | · | |
Making frequent trips to the doctor | · | ||
Going to the hospital | · | ||
Autonomy (“Doing Things”) | Doing things I want to do when I want to do them | · | · |
Doing my usual activities | · | · | |
Freedom and control over my life | · | · | |
What I can eat or drink | · | ||
Control over my treatment schedule | · | ||
Going places by myself | · | ||
My quality of life | · | · | |
My social life | · | · | |
Ability to do things in my free time | · | · | |
How much free time I have | · | · | |
How I feel about traveling | · | · | |
Ability to go to work | · | · | |
What I can do at work | · | ||
How I feel about my work | · | · | |
My job and money | · | · | |
How free I feel to do things | · | ||
Ability to do day-to-day tasks | · | ||
My ability to get around | · | ||
How I feel about getting around | · | ||
Caring for myself | · | · | |
Treatment Delivery (“How Treatment Works”) | Dialysis/transplant going as expected | · | |
Pills I have to take | · | ||
Providing my own treatment | · | ||
Ordering/storing supplies at home | · | ||
Fistula or catheter problems | · | ||
Finding a living donor | · | ||
Surgery for fistulas or catheters | · | ||
Blood tests, x-rays, and doctor visits | · | ||
Symptoms(“Symptoms”) | Feeling tired | · | · |
Thinking clearly | · | · | |
My memory | · | · | |
My attention | · | · | |
How well I can learn | · | ||
Itching, cramping, or aching | · | · | |
Gaining weight | · | ||
Pain | · | · | |
Joint pain | · | ||
How healthy my body feels | · | ||
My energy | · | · | |
Cramps | · | · | |
Stomach problems | · | · | |
Bowel problems | · | · | |
Cough | · | ||
Trouble breathing | · | · | |
Skin problems | · | ||
Dry skin | · | ||
Changes in skin color | · | ||
How well I sleep | · | ||
How I feel about my looks | · | · | |
Relationships (“Relationships”) | Family and friends need to help | · | |
Making new friends | · | ||
Having and enjoying sexual relations | · | · | |
Sex drive | · | · | |
Orgasm problems | · | ||
Pain with sex | · | ||
Erection problems (Men) | · | · | |
Ejaculation problems (Men) | · | ||
Chances of having sex (Men) | · | ||
Trouble getting excited (Women) | · | · | |
Vaginal dryness (Women) | · | · | |
Psychological (“Feelings”) | Feeling sad, anxious, or stressed out | · | · |
Chances of being depressed | · | · | |
My nerves | · | · | |
My well-being | · | · | |
My emotions | · | · | |
My mood | · | · | |
How happy I am with my life | · | · | |
Finance (“Money Matters”) | Money spent from own pocket | · |