Skip to main content

Table 1 Topics addressed in the decision aid

From: Development of a decision aid to inform patients’ and families’ renal replacement therapy selection decisions

Concern Factor Video Handbook
Morbidity/Mortality Living longer   
(“Health Problems”) Infections · ·
Complications with surgery · ·
Making frequent trips to the doctor ·  
Going to the hospital ·  
Autonomy (“Doing Things”) Doing things I want to do when I want to do them · ·
Doing my usual activities · ·
Freedom and control over my life · ·
What I can eat or drink ·  
Control over my treatment schedule ·  
Going places by myself ·  
My quality of life · ·
My social life · ·
Ability to do things in my free time · ·
How much free time I have · ·
How I feel about traveling · ·
Ability to go to work · ·
What I can do at work   ·
How I feel about my work · ·
My job and money · ·
How free I feel to do things   ·
Ability to do day-to-day tasks   ·
My ability to get around   ·
How I feel about getting around   ·
Caring for myself · ·
Treatment Delivery (“How Treatment Works”) Dialysis/transplant going as expected ·  
Pills I have to take ·  
Providing my own treatment ·  
Ordering/storing supplies at home ·  
Fistula or catheter problems ·  
Finding a living donor ·  
Surgery for fistulas or catheters ·  
Blood tests, x-rays, and doctor visits ·  
Symptoms(“Symptoms”) Feeling tired · ·
Thinking clearly · ·
My memory · ·
My attention · ·
How well I can learn   ·
Itching, cramping, or aching · ·
Gaining weight ·  
Pain · ·
Joint pain   ·
How healthy my body feels   ·
My energy · ·
Cramps · ·
Stomach problems · ·
Bowel problems · ·
Cough   ·
Trouble breathing · ·
Skin problems   ·
Dry skin   ·
Changes in skin color   ·
How well I sleep   ·
How I feel about my looks · ·
Relationships (“Relationships”) Family and friends need to help ·  
Making new friends ·  
Having and enjoying sexual relations · ·
Sex drive · ·
Orgasm problems   ·
Pain with sex   ·
Erection problems (Men) · ·
Ejaculation problems (Men)   ·
Chances of having sex (Men)   ·
Trouble getting excited (Women) · ·
Vaginal dryness (Women) · ·
Psychological (“Feelings”) Feeling sad, anxious, or stressed out · ·
Chances of being depressed · ·
My nerves · ·
My well-being · ·
My emotions · ·
My mood · ·
How happy I am with my life · ·
Finance (“Money Matters”) Money spent from own pocket ·