Table 1 Participant Characteristics
n (%) | |
|---|---|
Sample Size | 21 |
Gender | |
Male | 5 (24) |
Female | 16 (76) |
Age | |
Mean | 58.9 (10.7) years |
15–25 yrs | 0 |
26–50 yrs | 6 (29) |
51–75 yrs | 15 (71) |
>=76 yrs | 0 |
Highest qualification | |
Year 10 or below (or equivalent) | 1 (4.8) |
Year 12 / HSC (or equivalent) | 0 (0.0) |
TAFE certificate/diploma | 5 (23.8) |
Bachelor’s degree | 9 (42.9) |
Postgraduate degree (e.g. Masters, PhD) | 6 (28.6) |
Current employment | |
Working full-time | 6 (28.6) |
Working part-time | 5 (23.8) |
On sick leave | 2 (9.5) |
Not employed | 3 (14.3) |
Retired | 5 (23.8) |
Country of birth | |
Australia | 17 (81.0) |
Other (e.g. England, Germany, New Zealand) | 4 (19.0) |
Language spoken most at home | |
English | 19 (90.5) |
Other (e.g. German, Lithuanian) | 2 (9.5) |
Ethnicity | unknown |
Time since cancer diagnosis | |
Less than 12 months | 6 (28.6) |
1 to 5 years | 11 (52.4) |
6 to 10 years | 4 (19.0) |
Cancer type | |
Breast | 7 (33.3) |
Gynaecological | 1 (4.8) |
Breast + gynaecological + liver | 1 (4.8) |
Breast + lung | 1 (4.8) |
Lung | 1 (4.8) |
Melanoma | 1 (4.8) |
Breast + melanoma | 1 (4.8) |
Myeloma | 1 (4.8) |
Breast + Prostate | 1 (4.8) |
Stomach | 1 (4.8) |
Thyroid + breast + gynaecological + appendix | 1 (4.8) |
Bowel + lung | 1 (4.8) |
Bowel + breast | 1 (4.8) |
Other (pituitary, carcinoma of ureter) | 2 (9.5) |
Cancer stage at diagnosis | |
Localised (Stage 1) | 6 (28.6) |
Locally advanced (Stage 2 or Stage 3) | 7 (33.3) |
Metastatic (Stage 4) | 3 (14.3) |
Unknown | 2 (9.5) |
Other (“high grade” / cancer spread years after primary diagnosis) | 3 (14.3) |
Initial cancer treatment | |
Surgery | 3 (14.3) |
Surgery + chemotherapy | 3 (14.3) |
Surgery + radiotherapy | 2 (9.5) |
Surgery + chemotherapy + radiotherapy | 6 (28.6) |
Surgery + other a | 1 (4.8) |
Surgery + chemotherapy + radiotherapy + other a | 4 (19.0) |
Chemotherapy + radiotherapy + other a | 1 (4.8) |
Other a | 1 (4.8) |
Time since initial treatment completed | |
Less than six months | 5 (23.8) |
Over six months | 15 (71.4) |
Have not completed initial treatment | 1 (4.8) |
Current treatment | |
Chemo pills | 2 (9.5) |
Hormone therapy | 6 (28.6) |
Chemo pills + hormone therapy | 1 (4.8) |
No other treatments | 11 (52.4) |
Other (targeted therapy) | 1 (4.8) |
Current mental health care | |
GP | 1 (4.8) |
GP + psychologist | 2 (9.5) |
Psychologist | 4 (19.0) |
Psychiatrist | 1 (4.8) |
None | 13 (61.9) |
Previous mental health care | |
GP | 1 (4.8) |
GP + psychologist | 2 (9.5) |
Psychologist | 4 (19.0) |
Psychologist + psychiatrist | 2 (9.5) |
GP + psychologist + psychiatrist | 2 (9.5) |
None | 10 (47.6) |
Informed about mental health by cancer team | |
Yes | 9 (42.9) |
No | 11 (52.4) |
Don’t know | 1 (4.8) |
Provided with sufficient information | |
Yes | 8 (38.1) |
No | 2 (9.5) |
N/A | 11 (52.4) |
Current mood state (DASS-21) | |
Depression | |
Normal (0–4) | 11 (52.4) |
Mild (5–6) | 2 (9.5) |
Moderate (7–10) | 5 (23.8) |
Severe (11–13) | 2 (9.5) |
Extremely severe (14+) | 1 (4.8) |
Anxiety | |
Normal (0–3) | 16 (76.2) |
Mild (4–5) | 1 (4.8) |
Moderate (6–7) | 1 (4.8) |
Severe (8–9) | 1 (4.8) |
Extremely severe (10+) | 2 (9.5) |
Stress | |
Normal (0–7) | 13 (61.9) |
Mild (8–9) | 4 (19.0) |
Moderate (10–12) | 1 (4.8) |
Severe (13–16) | 3 (14.3) |
Extremely severe (17+) | 0 (0.0) |
M (SD) | |
Information preferences – amount (/5) | 4.62 (0.97) |
n (%) | |
Information preferences - type | |
As much information as possible | 18 (85.7) |
Additional information only if good news | 1 (4.8) |
Only information to take care of myself | 2 (9.5) |
Involvement in decision-making | |
Patient-led without clinician | 0 |
Patient-led with clinician | 5 (23.8) |
Shared/collaborative | 10 (47.6) |
Clinician led with patient | 6 (28.6) |
Clinician led without patient | 0 |
Health literacy | |
Adequate (0–10) | 21 (100.0) |