From: Using provocative design to foster electronic informed consent innovation
When personal data is shared with physicians all over the world or with a pharmaceutical company, larger clinical studies can be conducted to advance scientific research |
Concerns were raised about the differing privacy rules at a global level |
When personal information is shared only with physicians of the hospital that has been conducting the study in which the participant has taken part, possibilities are limited from a scientific point of view |
A desire was expressed to be able to tailor preferences about whom participants want to share their personal data with |
Trust in a new research study, conducted by foreign physicians or a pharmaceutical company, may be positively impacted by discussing the study with the participant’s treating physician |
Specific information must be provided on the name of the pharmaceutical company |