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Table 2 Participant perceptions regarding free consent decision (Q1, Q2, Q3) and sufficient information (Q4)

From: Secondary use of health care data and left-over biosamples within the ‘Medical Informatics Initiative’ (MII): a quasi-randomized controlled evaluation of patient perceptions and preferences regarding the consent process

Q1. Did you feel to be able to freely decide for or against the scientific use of patient data and left-over samples? (0/25/50/75/100; 0 = No free decision; 100 = Free decision) (n = 262)

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Q2. Are you worried of being disadvantaged in case you decide against the scientific use of your patient data and left-over samples? (0/25/50/75/100; 0 = No concerns, 100 = Max. concerns (n = 262)

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Q3. Was it clear to you, that both conversations—for patient admission and to inform about the scientific use of patient data and left-over samples—are completely independent from each other? (0/25/50/75/100; 0 = Not clear at all, 100 = Perfectly clear) (n = 263)

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Q4. At this time-point, do you feel being sufficiently informed about the scientific use of patient data and left-over samples? (0/25/50/75/100; 0 = Absolutely insufficiently informed, 100 = Max. informed) (n = 262)

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