Characteristics* | Phase 1 (n = 10) | Phase 2 (n = 10)†|
---|---|---|
Age, range‡ | 3 months–15 years 4 months | 3.5 months–10 years |
Age of tracheostomy decision, range | 1 month–14 years 6 months | At birth–about 10 years |
Duration of tracheostomy if applicable, range | 3 months–1 year ongoing | 1 year and 9 months–3 years ongoing |
Sex, n (%) | ||
Boys | 7 (70) | 4 (40) |
Girls | 3 (30) | 6 (60) |
Race, n (%) | ||
White | 9 (90) | 6 (60) |
Black | 1 (10) | 0 (0) |
Mixed (White with one other race) | 0 (0) | 3 (30) |
Hispanic | 0 (0) | 1 (10) |
Final decision, n (%) | ||
Tracheostomy with ventilator | 4 (40) | 5 (50) |
Tracheostomy without ventilator | 2 (20) | 0 (0) |
No tracheostomy | 4 (40) | 5 (50) |
Current condition, n (%) | ||
Tracheostomy with ventilator, alive | 3 (30) | 4 (40) |
Tracheostomy without ventilator, alive | 2 (20) | 0 (0) |
Tracheostomy removed, alive | 0 (0) | 1 (10) |
No tracheostomy, alive | 3 (30) | 1 (10) |
Deceased more than 6Â months ago | 2 (20) | 4 (40) |