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Table 4 Themes and sub-themes identifying facilitators for DRSs

From: Barriers and facilitators for disease registry systems: a mixed-method study

Themes Sub-theme1 No of participants Meaning units
Management facilitators Appropriate resource management 13 40
  Increasing awareness and education 8 19
  Organizational facilitators 8 19
  Formation of scientific and executive teams 7 14
  Establishing registry guidelines 5 8
  Appropriate composition of the steering committee members 5 5
  Qualified managers 4 7
  Understanding the purpose of DRSs 4 5
  Evaluation of DRS 2 5
  Conducting feasibility study before implementing a DRS 1 1
Proper data collection Exact definition of cases to be included in DRSs 6 7
  Appropriate data set (minimum data set) 5 8
  Collecting registry data from electronic health record system 4 4
  Collecting data during its generation (in the routine clinical process) 2 5
  Hiring appropriate data collectors 2 2
Using appropriate technology Interoperability and integration of registry software with other information systems 8 10
  Providing appropriate software 4 8
  Working with successful and famous IT vendors in the field of registry software 2 2
  Proper data storage and backup 2 2
Observing ethics, data security and confidentiality Developing legal guidelines 4 5
  Observing patients’ data confidentiality 4 8
  Developing security measures in software 2 2
Improving data quality Monitoring and evaluating data quality 9 29
  Preventive n measures against data errors 4 4
  Continuous follow-up to complete the missing data 2 3
Using standards Standardization of data in DRSs 4 4
  Using clinical coding (terminology) standards 1 1
  Using data exchange standards to communicate with the electronic health record systems 1 1
Improving cooperation/coordination Cooperation and coordination between registries 4 5
  Group and team collaboration between DRS stakeholders 4 4
Increasing motivation and interest Hiring interested people for DRSs 4 4
  Taking a variety of measures to increase interest and motivation 3 7
Increasing patients’ participation Attempts to attract patients’ participation 7 10
  Obtaining informed consent and fully explaining the goals of patients’ participation to patients 3 3