Participatory methods in a digital setting: experiences from the co-creation of an eHealth tool for people with chronic obstructive pulmonary disease

Table 1 Characteristics of co-creators

Characteristics^a	Persons with COPD (n = 10)	Relatives (n = 2)	Health care professionals (n = 5)^b
Age, years	71.1 ± 10.8	74.5 ± 6.4	n/a
Women	6 (60)	1 (50)	4 (80)
Public health care region
Region Västerbotten	5 (50)	2 (100)	2 (40)
Region Stockholm	5 (50)	0	2 (40)
Other	0	0	1 (20)
Living rural	4 (40)	2 (100)	n/a
Employment
Occupational pension	7 (70)	2 (100)	1 (20)
Disability pension	2 (20)	-	-
Gainful employment	1 (10)	-	4 (80)
Years within profession (min–max)	n/a	n/a	20 ± 14 (5–36)
Time since COPD diagnosis, years (min–max)	9.6 ± 8.2 (1–24)	n/a	n/a
FEV₁, % predicted (min–max)	49 ± 24 (20–91)	n/a	n/a
FEV% (min–max)	51 ± 17 (22–70)	n/a	n/a
COPD assessment test (min–max)^c	18 ± 10 (4–33)	n/a	n/a
Moderate-vigorous intensity physical exercise ≥ 30 min/week	5 (50)	n/a	n/a
Low intensity physical activity (≥ 10 min bouts) ≥ 30 min/week	7 (70)	n/a	n/a

COPD: Chronic obstructive pulmonary disease; FEV₁: Forced Expiratory Volume in one second; FEV%: Forced Expiratory Volume (FEV₁/FVC)
^aValues are mean ± standard deviation, SD or number (percent, %)
^bIncluding the patient organization representative
^cScores ranging from 0 to 40, with higher values indicating more symptoms

ISSN: 1472-6947