Table 1 Personal characteristics of participants

Online survey: participants personal characteristics n = 38

Focus group 1: n = 6

Focus group 2: n = 5

Gender

Female: 30

Female: 3

Female: 5

Male: 8

Male: 3

Median age (range)

44 (21–71)

(26–60)

(21–71)

Ethnicity

White British: 30

5 white British, 1 Spanish

All white British

Other white background: 5 (1 Spanish, 1 Portuguese, 1 Polish, 1 not stated, 1 Irish)

Indian: 1

Pakistani: 1

Smoking status

Never smoker: 25

Not captured

Not captured

Ex-smoker: 12

Current smoker: 1

Years since HL treatment:

 < 5: 17

 < 5 years: 4

 < 5 years: 1

5–10: 6

5–10 years: 2

5–10 years: 2

11–15: 3

 > 20 years: 2

16–20: 1

 > 20 years: 11

Follow-up status

21 remain in follow-up

4/6 remain in follow-up

3/5 remain in follow-up

17 discharged from follow-up

Treatment for HL

Not captured

All received chemotherapy alone

Radiotherapy only: 1 Chemotherapy only: 2

Both: 2

Level of education completed

Not captured

2: GCSE/O-level

2: A-levels/other college education

1: A-levels

3: university educated

3: university educated

Role (number)

Consultant haematologist (3)

Senior registrar (doctor) (1)

Advanced nurse practitioners (haematology/lymphoma) (3)

Clinical nurse specialist in lymphoma (4)