From: Patients’ views of shared decision making in inflammatory bowel disease: a survey in China
Overall (percent) | Prefer to participate in SDM | Prefer not to participate | p value | |
---|---|---|---|---|
Number | 1118 | 945 | 173 | |
Percent of all patients | 84.5% | 15.5% | ||
Mean age (SD), years | 33.8 (11.2) | 33.5 (10.8) | 35.6 (13.6) | 0.021 |
Male gender | 665 (59.5%) | 577 (61.1%) | 88 (50.9%) | 0.012 |
Disease type | 0.038 | |||
Crohn's disease | 857 (76.7%) | 735 (77.8%) | 122 (70.5%) | |
Ulcerative disease | 213 (19.1%) | 168 (17.8%) | 45 (26%) | |
Unclassified colitis | 48 (4.3%) | 42 (4.4%) | 6 (3.5%) | |
Active CD or UC | 245 (26.9%) | 210 (25.5%) | 35 (23.5%) | 0.595 |
Duration of disease | 0.083 | |||
0–0.5 years | 103 (9.2%) | 82 (8.7%) | 21 (12.1%) | |
0.5–5 years | 559 (50.0%) | 485 (51.3%) | 74 (42.8%) | |
≥ 5 years | 456 (40.8%) | 378 (40.0%) | 78 (45.1%) | |
Education | 0.000 | |||
Elementary school and below | 34 (3%) | 26 (2.8%) | 8 (4.6%) | |
Junior high school | 194 (17.4%) | 144 (15.2%) | 50 (28.9%) | |
Senior high school and technical secondary school | 238 (21.3%) | 198 (21.0%) | 40 (23.1%) | |
Junior college | 225 (20.1%) | 196 (20.7%) | 29 (16.8%) | |
Undergraduate | 384 (34.3%) | 341 (36.1%) | 43 (24.9%) | |
graduate degree | 43 (3.8%) | 40 (4.2%) | 3 (1.7%) | |
Incomea | 0.008 | |||
< 2000 RMB | 107 (9.6%) | 82 (8.7%) | 25 (14.5%) | |
2000 RMB–5000 RMB | 395 (35.3%) | 326 (34.5%) | 69 (39.9%) | |
5000 RMB–10,000 RMB | 356 (31.8%) | 308 (32.6%) | 48 (27.7%) | |
10,000 RMB–20,000 RMB | 183 (16.4%) | 156 (16.5%) | 27 (15.6%) | |
> 20,000 RMB | 77 (6.9%) | 73 (7.7%) | 4 (2.3%) | |
Medical insurance | ||||
Basic medical insurance | 804 (71.9%) | 690 (73%) | 114 (65.9%) | 0.055 |
New rural cooperative medical insurance | 341 (30.5%) | 273 (28.9%) | 68 (39.3%) | 0.006 |
Commercial insurance | 57 (5.1%) | 54 (5.7%) | 3 (1.7%) | 0.029 |
None | 11 (1%) | 9 (1.0%) | 2 (1.2%) | 0.803 |
Has ever been hospitalized (inpatient) | 1039 (92.9%) | 880 (93.1%) | 159 (91.9%) | 0.567 |
Surgical history | 400 (35.8%) | 338 (35.8%) | 62 (35.8%) | 0.986 |
Has not discussed with doctor before surgery | 63 (15.8%) | 51 (15.1%) | 12 (19.4%) | 0.251 |
Medicine history | ||||
5-ASA | 690 (61.7%) | 572 (60.5%) | 118 (68.2%) | 0.056 |
Glucocorticoids | 388 (34.7%) | 329 (34.8%) | 59 (34.1%) | 0.857 |
Immunomodulator | 618 (55.3%) | 519 (54.9%) | 99 (57.2%) | 0.575 |
Biological agents | 588 (52.6%) | 506 (53.5%) | 82 (47.4%) | 0.137 |
Nutritional | 628 (56.2%) | 525 (55.6%) | 103 (59.5%) | 0.332 |
Others | 120 (10.7%) | 102 (10.8%) | 18 (10.4%) | 0.879 |
Has joined a self-help group | 1107 (99.0%) | 936 (99.0%) | 171 (98.8%) | 0.803 |
Has never learned IBD knowledge online or through WeChat | 59 (5.3%) | 43 (4.6%) | 16 (9.2%) | 0.003 |
Has never learned IBD knowledge through books | 95 (8.5%) | 65 (6.9%) | 30 (17.3%) | 0.000 |
Familiarity with SDM | 0.016 | |||
Has never heard of it | 387 (34.6%) | 310 (32.8%) | 77 (44.5%) | |
Knows about it but not exactly | 393 (35.2%) | 339 (35.9%) | 54 (31.2%) | |
Knows the general meaning | 292 (26.1%) | 252 (26.7%) | 40 (23.1%) | |
Has a thorough knowledge | 18 (1.6%) | 18 (1.9%) | 0 | |
Has participated in SDM | 28 (2.5%) | 26 (2.8%) | 2 (1.2%) |