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Table 2 Patient-Reported Outcomes included in ICHOM Standard Sets, classified according to the PROMIS domain framework [62]

From: Common patient-reported outcomes across ICHOM Standard Sets: the potential contribution of PROMIS®

 

PROMIS Global Health domain

PROMIS profile domains

PROMIS additional domains

Non-PROMIS domains

Total

Physical health

Mental health

Social health

Physical health

Mental health

Physical health

Physical function

General

health status

Health-related quality of life

Quality of life

Fatigue

Pain

General

Mobility

Upper extre-mity

Sleep distur-bance

General

Anxiety

Depres-sion

Ability to participate in social roles/peer relation-ships

Dyspnea

Gastro-intestinal Symptoms

Sexual function

Cognitive function

Hearing

Speech communication

Urinary symp-toms

Vision

Other

Addiction

1

    

1

   

1

  

1

        

5

10

Adult oral health

    

1

   

1

   

2

     

1

  

4

9

Advanced prostate cancer

   

1

1

1

   

1

    

1

1

   

1

 

1

8

Artrial fibrilation

 

1

   

1

   

1

  

1

   

1

    

1

6

Breast cancer

  

1

1

1

1

 

1

 

1

1

1

2

  

2

1

    

5

18

Cataract

                    

1

 

1

Chronic kidney disease

 

1

 

1

1

2

     

1

          

6

Cleft lip and palate

          

1

1

2

1

    

1

  

5

11

Colorectal cancer

  

1

1

1

1

1

  

1

 

1

1

 

6

3

     

1

18

Congetinal heart disease

 

1

1

       

1

1

1

         

5

Congenital upper limb anomalies

 

1

     

1

 

1

           

1

4

Coronary artery disease

 

1

   

1

     

1

 

1

       

1

5

COVID-19

 

1

       

1

1

1

1

1

1

 

1

   

1

1

10

Craniofacial microsomia

 

1

   

1

    

1

1

1

1

   

1

1

 

1

4

13

Dementia

  

1

 

1

                

1

3

Depression and anxiety

     

1

    

4

1

2

        

3

11

Depression and anxiety for children and young people

2

         

1

2

         

2

7

Diabetes

  

1

        

1

         

1

3

Hand and wrist conditions

 

1

  

1

1

 

1

    

1

        

1

6

Heart failure

 

1

 

1

 

2

  

1

 

1

1

1

        

2

10

Hip and knee osteoarthritis

  

1

 

1

1

      

1

         

4

Hypertension in low and middle income countries

  

1

            

1

      

2

Inflammatory arthritis

1

  

1

1

1

      

1

         

5

Inflammatory bowel disease

   

1

1

     

1

   

2

      

3

8

Localized prostate cancer

              

1

1

   

2

 

1

5

Low back pain

 

1

  

2

1

      

1

         

5

Lung cancer

1

 

1

1

1

1

   

1

  

1

2

  

1

     

10

Macula degeneration

      

1

  

1

          

1

 

4

Older person

    

1

1

   

1

  

2

    

1

    

6

Overactive bladder

 

1

             

1

     

1

3

Overall adult health

2

  

2

1

1

1

 

1

1

1

1

3

    

1

  

1

 

16

Overall pediatric health

1

1

  

1

 

1

 

1

1

  

1

  

1

1

1

1

 

1

1

13

Parkinson's disease

 

1

1

1

1

5

1

 

2

   

2

 

2

1

1

 

1

1

 

7

27

Pediatric facial palsy

 

1

          

1

        

2

4

Personality disorders

 

1

   

2

   

3

1

 

2

         

9

Pregnancy and childbirth

 

1

         

1

   

1

   

1

  

4

Preterm and hospitalized newborn health

 

1

  

1

1

  

1

1

1

1

3

     

1

   

11

Psychotic disorders

1

1

2

     

1

  

2

2

        

2

11

Stroke

2

    

1

1

     

1

   

1

 

1

  

1

8

Total

11

18

11

11

18

28

6

3

8

16

15

18

37

6

13

12

7

4

7

5

6

58

 

Number of sets that include the outcome

8

18

10

10

17

21

6

3

7

14

12

16

25

5

6

9

7

4

7

4

6

25

 
  1. The numbers in each cell represent the number of outcomes covering the respective PRO concept included in the ICHOM Standard Set Reference Guide