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Table 2 Patient-Reported Outcomes included in ICHOM Standard Sets, classified according to the PROMIS domain framework [62]

From: Common patient-reported outcomes across ICHOM Standard Sets: the potential contribution of PROMIS®

  PROMIS Global Health domain PROMIS profile domains PROMIS additional domains Non-PROMIS domains Total
Physical health Mental health Social health Physical health Mental health Physical health
Physical function
General
health status
Health-related quality of life Quality of life Fatigue Pain General Mobility Upper extre-mity Sleep distur-bance General Anxiety Depres-sion Ability to participate in social roles/peer relation-ships Dyspnea Gastro-intestinal Symptoms Sexual function Cognitive function Hearing Speech communication Urinary symp-toms Vision Other
Addiction 1      1     1    1          5 10
Adult oral health      1     1     2       1    4 9
Advanced prostate cancer     1 1 1     1      1 1     1   1 8
Artrial fibrilation   1     1     1    1     1      1 6
Breast cancer    1 1 1 1   1   1 1 1 2    2 1      5 18
Cataract                      1   1
Chronic kidney disease   1   1 1 2       1            6
Cleft lip and palate            1 1 2 1      1    5 11
Colorectal cancer    1 1 1 1 1    1   1 1   6 3       1 18
Congetinal heart disease   1 1         1 1 1           5
Congenital upper limb anomalies   1       1   1             1 4
Coronary artery disease   1     1       1   1         1 5
COVID-19   1         1 1 1 1 1 1   1     1 1 10
Craniofacial microsomia   1     1      1 1 1 1     1 1   1 4 13
Dementia    1   1                  1 3
Depression and anxiety       1      4 1 2          3 11
Depression and anxiety for children and young people 2           1 2           2 7
Diabetes    1          1           1 3
Hand and wrist conditions   1    1 1   1      1          1 6
Heart failure   1   1   2    1   1 1 1          2 10
Hip and knee osteoarthritis    1   1 1        1           4
Hypertension in low and middle income countries    1              1        2
Inflammatory arthritis 1    1 1 1        1           5
Inflammatory bowel disease     1 1       1     2        3 8
Localized prostate cancer                1 1     2   1 5
Low back pain   1    2 1        1           5
Lung cancer 1   1 1 1 1     1    1 2    1       10
Macula degeneration        1    1            1   4
Older person      1 1     1    2      1      6
Overactive bladder   1               1       1 3
Overall adult health 2    2 1 1 1   1 1 1 1 3      1    1   16
Overall pediatric health 1 1    1   1   1 1    1    1 1 1 1   1 1 13
Parkinson's disease   1 1 1 1 5 1   2     2   2 1 1   1 1   7 27
Pediatric facial palsy   1            1          2 4
Personality disorders   1     2     3 1   2           9
Pregnancy and childbirth   1           1     1     1    4
Preterm and hospitalized newborn health   1    1 1    1 1 1 1 3       1     11
Psychotic disorders 1 1 2       1    2 2          2 11
Stroke 2      1 1       1     1   1    1 8
Total 11 18 11 11 18 28 6 3 8 16 15 18 37 6 13 12 7 4 7 5 6 58  
Number of sets that include the outcome 8 18 10 10 17 21 6 3 7 14 12 16 25 5 6 9 7 4 7 4 6 25  
  1. The numbers in each cell represent the number of outcomes covering the respective PRO concept included in the ICHOM Standard Set Reference Guide