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Table 2 Basic structural elements in the identified DAs

From: Development of decision aids for female BRCA1 and BRCA2 mutation carriers in Germany to support preference-sensitive decision-making

Main topic Basic structural elements References (DA)
Target group Women with BRCA1/2 mutation [57, 58]
Women at high risk of breast cancer [59, 61, 64]
Women at high risk of ovarian cancer [60, 62, 63]
Addressed target decision Preventive options related to breast and ovarian cancer [58]
Preventive options only/mainly related to breast cancer [57, 59, 61, 64]
Preventive options only/mainly related to ovarian cancer [60, 62, 63]
Medical information Family history of breast and/or ovarian cancer (explanations, even if brief) [59,60,61,62,63,64]
Impact of a pathogenic BRCA1/2 mutation (reason for high risk of breast and/or ovarian cancer) [57,58,59,60,61,62,63,64]
Average morbidity rates for breast and/or ovarian cancer (text and/or number values and/or graphics) [57, 58, 61,62,63,64]
(a) Lifetime risks (a) [57, 58, 61,62,63]
(b) Time and/or age-related morbidity rates (b) [62,63,64] (example information)
Preventive options (explanations, even if brief) [57,58,59,60,61,62,63,64]
Outcomes with and without preventive measure (text and/or number values and/or graphics) [57, 58, 60,61,62,63,64]
Consequences of the different preventive measures (text and/or number values and/or graphics) [57,58,59,60,61,62,63,64]
Hormone replacement therapy to counteract consequences of risk-reducing removal of both ovaries and Fallopian tubes [60, 62, 63]
Benefits and risks of the different preventive measures and/or comparison of the options (option grid) [57, 59,60,61,62,63,64]
Personal stories (testimonies) [61, 64]
Appendix with fact boxes [57, 61]
Tools for decision-making support General information on dealing with decision-making [57, 64]
Step-by-step guide to decision-making [57, 62, 63]
Tools to assist with clarifying own values and preferences, e.g
To reflect on personal opinions regarding the advantages and disadvantages of the options by answering set response options (box-ticking) and/or using note spaces for free-form reflections
To reflect on the current tendency towards or against a certain option
[57, 61,62,63]
Question lists addressing medical information and/or doctor-patient dialogue [60, 64]
Other Glossary [57, 58]
Contact addresses and/or internet links [58, 62,63,64]
References, further literature [57,58,59,60,61,62,63,64]
  1. BRCA1/2 BReast CAncer gene 1 and 2, DA decision aid; [59,60,61]: a current version dated 2019 is available