Repository | Created | Data elements | Scope and content |
---|---|---|---|
2003 | 70,472 | Defines a comprehensive set of standardized metadata descriptors for cancer research data. It contains common data elements from National Cancer Institute offices and partner organizations | |
CancerGrid [16] | 2005–2010 | Website not available anymore | A shared catalogue of standard metadata for cancer trials. It contained common data elements from project partners |
CoMetaR [17] | 2017 | 1528 | A platform for browsing, discussing, and editing metadata for respiratory diseases. It provides metadata concepts and an ontology |
MDM Portal [13] | 2011 | 578,299 | Online infrastructure to for creating, analyzing, sharing, and reusing medical forms. It contains medical forms curated by medical experts |
METeOR | 2005 | 4668 | Australia's repository for national metadata standards for the health, community services, and housing assistance sectors. It provides metadata creation tools and contains endorsed standards |
Samply.MDR [18] | 2015 | 672–1936 | Open-source MDR implementation for managing and publishing metadata in a standardized and reusable way. It is used for different German study registers |
USHIK | 2006 | 29,646 | Online, publicly accessible registry and repository of healthcare-related metadata, specifications, and standards. It contains information from numerous healthcare-related initiatives |