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Table 6 Perceived usefulness of objective data by Prescribing and Supporting Clinicians

From: Designing a mHealth clinical decision support system for Parkinson’s disease: a theoretically grounded user needs approach

 

Prescribing Clinicians

Supporting Clinicians

Motor Symptoms

 Tremor

Important symptom in diagnosis and early stages of the disease.

Can influence PwP QoL in some cases (although as disease progresses this is considered to be less useful than other motor symptoms data).

Important symptom for establishment of appropriate occupational therapy care plan

Important symptom for establishment of appropriate physiotherapy care plan

Can impact on psychological wellbeing (e.g. shame/ embarrassment)

 Bradykinesia

Significantly influences PwP QoL.

Directly impacts on the pharmacological decisions made.

Is an indicator of the disease progression.

Important symptom for establishment of appropriate occupational therapy care plan

Important symptom for establishment of appropriate physiotherapy care plan

 Gait and Postural balance

Significantly influences PwP QoL.

Directly impacts on the pharmacological decisions made.

Important for the safety of the PwP (i.e. potential for increased falls/injury).

Important symptom for establishment of appropriate occupational care plan

Important symptom for establishment of appropriate physiotherapy care plan

Important for the safety of the PwP (i.e. potential for increased falls/injury).

 On/Off fluctuations/ Freezing

Significantly influences PwP QoL.

Directly impacts on the pharmacological decisions made.

Is an indicator of the disease progression.

Important for the safety of the PwP (i.e. increased falls/injury).

Important symptom for establishment of appropriate occupational therapy care plan

Important symptom for establishment of appropriate physiotherapy care plan

Can impact on psychological wellbeing (e.g. perception of shame/embarrassment)

Relevant symptom for establishment of appropriate speech therapy care plan.

 Dyskinesia

Significantly influences PwP QOL.

Directly impact on the pharmacological decisions made.

Is an indicator of the disease progression.

Important symptom for establishment of appropriate physiotherapy care plan

Can impact on psychological wellbeing (e.g. shame/ embarrassment)

 Speech disorders

Important symptom in diagnosis and early stages of the disease

Can influence PwP QOL in some cases (although as disease progresses this is considered to be less useful than other motor symptoms data).

Important symptom for establishment of appropriate speech therapy care plan

Can impact on psychological wellbeing (e.g. shame/ embarrassment)

 Muscle Rigidity

Significantly influences PwP QoL.

Directly impacts on the pharmacological decisions made.

Not specifically commented on by Supporting Clinicians

 Dysphagia

Significantly influences PwP QoL.

Significantly influences PwP QoL.

Relevant symptom for establishment of appropriate speech therapy care plan

Non-motor symptoms

 Cognitive Disorders/Dementia

Significantly influences PwP QoL.

Directly impacts on the pharmacological decisions made.

Is an indicator of the disease progression.

Can impact on psychological wellbeing (e.g. shame/ embarrassment)

Important symptom for establishment of appropriate occupational therapy care plan.

Important symptom for establishment of appropriate physiotherapy care plan

Important symptom for establishment of appropriate psychological care plan

 Depression/Anxiety

Significantly influences PwP QoL.

Directly impacts on the pharmacological decisions made.

Is an indicator of the disease progression.

Important symptom for establishment of appropriate occupational therapy care plan

Important symptom for establishment of appropriate physiotherapy care plan

Important symptom for establishment of appropriate psychological care plan

Relevant symptom for establishment of appropriate speech therapy care plan

 Impulse Control disorders

Significantly influences PwP QoL.

Directly impacts on the pharmacological decisions made.

Important symptom for establishment of appropriate occupational therapy care plan

Important symptom for establishment of appropriate physiotherapy care plan

Important symptom for establishment of appropriate psychological care plan

Relevant symptom for establishment of appropriate speech therapy care plan.

 Sleep Disorders/ Daytime Sleepiness

Significantly influences PwP QoL.

Can impact on the pharmacological decisions made.

Important symptom for establishment of appropriate occupational therapy care plan

Important symptom for establishment of appropriate physiotherapy care plan

Important symptom for establishment of appropriate psychological care plan

 Dizziness/Fainting

Significantly influences PwP QOL.

Can impact on the pharmacological decisions made.

Important for the safety of the PwP (i.e. increased falls/injury).

Important symptom for establishment of appropriate occupational care plan

Important symptom for establishment of appropriate physiotherapy care plan

Important for the safety of the PwP (i.e. potential for increased falls/injury).

 Fatigue

Significantly influences PwP QoL.

Can impact on the pharmacological decisions made.

Important symptom for establishment of appropriate occupational therapy care plan

Important symptom for establishment of appropriate physiotherapy care plan

Important symptom for establishment of appropriate psychological care plan

 Sweating

Can influence QoL for a minority of PwPs

Can influence QoL for a minority of PwPs

 Urinary/ Constipation Problems

Significantly influences PwP QoL.

Important symptom for establishment of appropriate physiotherapy care plan

Important symptom for establishment of appropriate nutritional care plan

 Nausea/ Gastro-intestinal problems

Can influence QoL for some PwPs

Important symptom for establishment of appropriate nutritional care plan

 Pain

Can influence QoL for a minority of PwPs

Can influence QoL for a minority of PwPs

 Hallucination incidence

Can influence QoL for a minority of PwPs

Can influence QoL for a minority of PwPs