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Table 2 Themes identified from staff interviews and anonymous feedback forms

From: An e-registry for household contacts exposed to multidrug resistant TB in Mongolia

Advantages of ODK
• Records were less likely to be lost, particularly investigation results
• Digital photos of x-rays could be stored for comparison over time
• Easier to transfer contact tracing information for patients moving districts
• Faster than paper, especially when using predictive text
Disadvantages of ODK
• Submitted data was not immediately visible on the device
• Registry numbers had to be entered multiple times (once on each form)
Improvements suggested by staff
• Make data more rapidly available for viewing
• Reduce the number of forms
• Allow data entry on PC
• Auto-populate certain fields e.g. follow up date
• Create a system that would automatically send out reminders to patients via SMS/email of upcoming appointments
Reasons given to staff by patients for refusing to join registry
• Already taking part in multiple other research studies
• Didn’t have time to bring their contacts to dispensary during study period
• Concern regarding security of their data being sent electronically – particularly that medical history would be shared on social media
Improvements suggested by patient
• To be able see their own e-record.
Reasons given on anonymous feedback forms
• Not wanting to share medical or personal data, even for research purposes
• Concern that their ‘information would be lost in the internet’
• Not understanding the purpose of the study (non-participant)