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Table 3 Example of item revision from cognitive interviewing process

From: Parental understanding of crucial medical jargon used in prenatal prematurity counseling

Original item presented to prematurity experts

Item tested in Round 1 cognitive interviews

Item tested in Round 2 cognitive interviews

Final item

Neonatal medical team will need to be present at birth

Neonatal medical team will need to be present at birth

Baby specialists will need to be present at birth

The baby specialists will need to be present at my delivery

Parents can switch to comfort care treatment if complications happen, even if resuscitation is chosen at the beginning.

I cannot stop intensive care treatment for my premature baby if complications happen

Parents have the option to stop intensive care treatment for their premature baby if serious complications happen

Parents have the option to stop intensive care treatment for their premature baby if serious complications happen

Before 25 weeks, parents can decide if they want full resuscitation or comfort care

What is the highest gestational age when parents can choose not to use intensive care treatment at birth

What is the highest gestational age at which parents can choose comfort care at birth?

What is the highest week of pregnancy at which parents can choose comfort care at birth

By how many days can the due date change, when the due date is based on a first trimester ultrasound

When the due date is based on an ultrasound performed in the first 13 weeks (first trimester) of pregnancy, by how many days can gestational age vary?

How accurate is your baby’s gestational age if it is based on a first trimester ultrasound? Within ____ days

How accurate is your due date?

How accurate is your due date if it is based on a first trimester ultrasound?

How accurate is your due date?

May not have any long lasting problems because of prematurity

May not have any long lasting problems because of prematurity

May be healthy later in life

May be healthy as a teenager