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Table 1 Overview of Study Participants

From: Caregivers' role in using a personal electronic health record: a qualitative study of cancer patients and caregivers in Germany

Participant group

ID

Sex

Age

Level of education

Comments

Pre-Implementation Study/ Patients

PRE_P_2

f

55

Secondary school leaving certificate

Friend attended Usability Test & Interview

PRE_P_3

f

66

Secondary school leaving certificate

Spouse attended Usability Test & Interview

PRE_P_4

m

48

University degree

Spouse attended Usability Test & Interview

PRE_P_5

m

60

Lower secondary school leaving certificate

 

PRE_P_6

f

47

High school graduation

 

PRE_P_9

m

63

Lower secondary school leaving certificate

 

PRE_P_13

m

48

Secondary school leaving certificate

Spouse attended Usability Test & Interview

PRE_P_14

f

67

Lower secondary school leaving certificate

Spouse attended Usability Test & Interview

PRE_P_15

m

47

Secondary school leaving certificate

 

PRE_P_16

m

53

University degree

 

PRE_P_17

f

68

University degree

Child attended Usability Test & Interview

Total PRE_P n = 11

Pre-Implementation Study/ Caregivers

PRE_C_01

f

53

Secondary school leaving certificate

Caregiver’s relation to the patient: Child

PRE_C_04

f

46

Secondary school leaving certificate

Caregiver’s relation to the patient: Spouse

PRE_C_05

m

67

Lower secondary school leaving certificate

Caregiver’s relation to the patient: Spouse

PRE_C_14

f

52

Secondary school leaving certificate

Caregiver’s relation to the patient: Spouse

PRE_C_15

f

64

Secondary school leaving certificate

Caregiver’s relation to the patient: Spouse

PRE_C_16

f

36

University degree

Caregiver’s relation to the patient: Child

PRE_C_17

f

51

Secondary school leaving certificate

Caregiver’s relation to the patient: Parent

PRE_C_20

m

67

Lower secondary school leaving certificate

Caregiver’s relation to the patient: Parent

PRE_C_22

m

33

Secondary school leaving certificate

Caregiver’s relation to the patient: Spouse

Total PRE_C n = 9

Feasibility Study/ Patients

FEA_P_2

f

27

High school graduation

 

FEA_P_5

f

53

Lower secondary school leaving certificate

 

FEA_P_6

m

49

University degree

Patient took part in PRE as well

FEA_P_10

f

61

Secondary school leaving certificate

 

FEA_P_11

m

56

Lower secondary school leaving certificate

 

FEA_P_12

f

44

University degree

 

FEA_P_13

f

55

Secondary school leaving certificate

 

FEA_P_15

m

61

University degree

 

FEA_P_21

m

64

University degree

 

FEA_P_27

f

43

Secondary school leaving certificate

 

FEA_P_30

m

57

University degree

 

Total FEA_P n = 11

  1. Table legend: PRE = Pre-Implementation Study / FEA = Feasibility Study / P = Patient / C = Caregiver