Data Preferences | n (%) |
---|---|
Feedback Preferences: If you donated your electronic data to health researchers, what type of feedback would you like to receive? | |
Exercise and eating habits | 130 (60%) |
Habits effect on health | 137 (63%) |
Language analysis from social media | 47 (22%) |
Comparison to other donors’ data | 62 (29%) |
Potential risk factors | 140 (65%) |
Other | 30 (14%) |
Result Sharing Preferences: If you donated your electronic data to researchers, who would you want insights from your data to be shared with? | |
Myself | 155 (72%) |
Researchers | 77 (36%) |
Health care provider | 111 (51%) |
Social network | 8 (4%) |
Family | 89 (41%) |
Others with similar health conditions | 58 (27%) |
General Privacy Preferences: I am generally a private person in my everyday life. | |
Agree | 175 (85%) |
Disagree | 22 (11%) |
Unsure | 9 (4%) |
I tend to reveal minimal personal information about myself online due to privacy concerns. | |
Agree | 157 (76%) |
Disagree | 33 (16%) |
Unsure | 16 (8%) |
I feel uncomfortable when other people have access to my personal information. | |
Agree | 157 (76%) |
Disagree | 27 (13%) |
Unsure | 22 (11%) |
I believe that there is no need to be concerned about revealing personal information online. | |
Agree | 44 (21%) |
Disagree | 149 (72%) |
Unsure | 13 (6%) |
It does not bother me that a history of my online activities may be available to 3rd parties online. | |
Agree | 41 (20%) |
Disagree | 146 (71%) |
Unsure | 19 (9%) |
I regularly use anti-virus/phishing/spamming software, or clear my browser history/cookies/cache. | |
Agree | 102 (50%) |
Disagree | 78 (38%) |
Unsure | 26 (13%) |
Digital Data Concerns (Yes vs. No): Information I share with friends online may be inappropriately disclosed by them to others. | |
Yes | 115 (56%) |
No | 66 (32%) |
Unsure | 25 (12%) |
People who you only know from online are not who they say they are. | |
Yes | 109 (53%) |
No | 54 (26%) |
Unsure | 43 (21%) |
Other internet users might try to defraud you or abuse your personal information. | |
Yes | 150 (73%) |
No | 31 (15%) |
Unsure | 25 (12%) |
Online companies and websites might try and share your information to other parties without explicit consent. | |
Yes | 153 (74%) |
No | 34 (17%) |
Unsure | 19 (9%) |
Online companies and websites might use your information for purposes not explicitly stated in the privacy policy. | |
Yes | 149 (72%) |
No | 34 (17%) |
Unsure | 23 (11%) |