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Table 4 Preferences for data sharing and data concerns

From: Patients’ willingness to share digital health and non-health data for research: a cross-sectional study

Data Preferences n (%)
Feedback Preferences: If you donated your electronic data to health researchers, what type of feedback would you like to receive?
 Exercise and eating habits 130 (60%)
 Habits effect on health 137 (63%)
 Language analysis from social media 47 (22%)
 Comparison to other donors’ data 62 (29%)
 Potential risk factors 140 (65%)
 Other 30 (14%)
Result Sharing Preferences: If you donated your electronic data to researchers, who would you want insights from your data to be shared with?
 Myself 155 (72%)
 Researchers 77 (36%)
 Health care provider 111 (51%)
 Social network 8 (4%)
 Family 89 (41%)
 Others with similar health conditions 58 (27%)
General Privacy Preferences: I am generally a private person in my everyday life.
 Agree 175 (85%)
 Disagree 22 (11%)
 Unsure 9 (4%)
I tend to reveal minimal personal information about myself online due to privacy concerns.
 Agree 157 (76%)
 Disagree 33 (16%)
 Unsure 16 (8%)
I feel uncomfortable when other people have access to my personal information.
 Agree 157 (76%)
 Disagree 27 (13%)
 Unsure 22 (11%)
I believe that there is no need to be concerned about revealing personal information online.
 Agree 44 (21%)
 Disagree 149 (72%)
 Unsure 13 (6%)
It does not bother me that a history of my online activities may be available to 3rd parties online.
 Agree 41 (20%)
 Disagree 146 (71%)
 Unsure 19 (9%)
I regularly use anti-virus/phishing/spamming software, or clear my browser history/cookies/cache.
 Agree 102 (50%)
 Disagree 78 (38%)
 Unsure 26 (13%)
Digital Data Concerns (Yes vs. No): Information I share with friends online may be inappropriately disclosed by them to others.
 Yes 115 (56%)
 No 66 (32%)
 Unsure 25 (12%)
People who you only know from online are not who they say they are.
 Yes 109 (53%)
 No 54 (26%)
 Unsure 43 (21%)
Other internet users might try to defraud you or abuse your personal information.
 Yes 150 (73%)
 No 31 (15%)
 Unsure 25 (12%)
Online companies and websites might try and share your information to other parties without explicit consent.
 Yes 153 (74%)
 No 34 (17%)
 Unsure 19 (9%)
Online companies and websites might use your information for purposes not explicitly stated in the privacy policy.
 Yes 149 (72%)
 No 34 (17%)
 Unsure 23 (11%)