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Table 3 patient questionnaire (responses in percentages)

From: Developing a patient portal for haematology patients requires involvement of all stakeholders and a customised design, tailored to the individual needs

Item

Disagree

Neutral

Agree

I would like to see the following about myself in the electronic patient portal

 1. Laboratory results

5

13

81

 2. Imaging results

6

16

78

 3. Medical patient file

4

10

86

 4. Reporting to other physicians

5

13

82

 5. Appointments in the hospital

3

5

91

 6. Personal data

5

9

87

 7. Current medication list

4

5

91

 8. Medication history

5

14

81

I would like to have the following other functionalities in the patient portal

 9. Make appointments

4

19

77

 10. Reminder for appointments

4

11

85

 11. Request medication recipe

3

10

87

 12. Change personal data

3

6

91

 13. Make personal notes

15

32

53

 14. Fill out questionnaires

6

25

69

 15. Medication information

3

11

86

 16. Disease information

4

16

80

 17. Glossary of medical jargon

5

14

82

 18. Patient organization information

6

28

66

I would like to see the information above (item 1–8) about myself in the portal at the following moment

 19. Directly when available

10

19

71

 20. After my physician discussed them with me

7

12

82

I would like to have the following communication options

 21. With fellow patients

23

51

26

 22. With allied health professionals

20

41

39

 23. With my own physician

4

9

88

The following is important to me about patient portal safety

 24. Decide by myself about who gets access

7

8

85

 25. Secure access

4

5

91

I would like to give the following persons full access to my patient portal, besides myself

 26. Partner

4

8

88

 27. Volunteer caregiver

35

35

30

 28. General practitioner

2

3

95

 29. Other physicians in hospital

4

10

86

I would like to give the following persons partial access to my patient portal, besides myself

 30. Other physicians in hospital

3

8

89

 31. Other health care professionals

19

26

56

 32. Nurses

12

21

67

 33. Apothecary

12

20

69

The following is important to me about the patient portal access

 34. Use it for clinic appointment preparation

4

16

81

 35. See what my physician writes about me

4

13

83

 36. Control my health care situation

3

14

83

 37. Use it as a reference after a clinic appointment

4

9

88

 38. I think it’s my right to see my results and file

3

14

84

 39. Usage of plain language instead of physicians’ jargon

5

14

81

 40. Information only opens after deliberately opening, not spontaneously

12

13

75

I have the following concerns about the patient portal

 41. Worry when I see results before the clinic appointment with my physician

33

16

51

 42. Receive information I don’t understand without my physician’s help

25

15

60

 43. The clinic appointment is focused more on portal details, instead of a personal conversation with my physician

26

25

50

 44. My physician expects me to study my portal information before attending an appointment

26

18

56