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Table 3 patient questionnaire (responses in percentages)

From: Developing a patient portal for haematology patients requires involvement of all stakeholders and a customised design, tailored to the individual needs

Item Disagree Neutral Agree
I would like to see the following about myself in the electronic patient portal
 1. Laboratory results 5 13 81
 2. Imaging results 6 16 78
 3. Medical patient file 4 10 86
 4. Reporting to other physicians 5 13 82
 5. Appointments in the hospital 3 5 91
 6. Personal data 5 9 87
 7. Current medication list 4 5 91
 8. Medication history 5 14 81
I would like to have the following other functionalities in the patient portal
 9. Make appointments 4 19 77
 10. Reminder for appointments 4 11 85
 11. Request medication recipe 3 10 87
 12. Change personal data 3 6 91
 13. Make personal notes 15 32 53
 14. Fill out questionnaires 6 25 69
 15. Medication information 3 11 86
 16. Disease information 4 16 80
 17. Glossary of medical jargon 5 14 82
 18. Patient organization information 6 28 66
I would like to see the information above (item 1–8) about myself in the portal at the following moment
 19. Directly when available 10 19 71
 20. After my physician discussed them with me 7 12 82
I would like to have the following communication options
 21. With fellow patients 23 51 26
 22. With allied health professionals 20 41 39
 23. With my own physician 4 9 88
The following is important to me about patient portal safety
 24. Decide by myself about who gets access 7 8 85
 25. Secure access 4 5 91
I would like to give the following persons full access to my patient portal, besides myself
 26. Partner 4 8 88
 27. Volunteer caregiver 35 35 30
 28. General practitioner 2 3 95
 29. Other physicians in hospital 4 10 86
I would like to give the following persons partial access to my patient portal, besides myself
 30. Other physicians in hospital 3 8 89
 31. Other health care professionals 19 26 56
 32. Nurses 12 21 67
 33. Apothecary 12 20 69
The following is important to me about the patient portal access
 34. Use it for clinic appointment preparation 4 16 81
 35. See what my physician writes about me 4 13 83
 36. Control my health care situation 3 14 83
 37. Use it as a reference after a clinic appointment 4 9 88
 38. I think it’s my right to see my results and file 3 14 84
 39. Usage of plain language instead of physicians’ jargon 5 14 81
 40. Information only opens after deliberately opening, not spontaneously 12 13 75
I have the following concerns about the patient portal
 41. Worry when I see results before the clinic appointment with my physician 33 16 51
 42. Receive information I don’t understand without my physician’s help 25 15 60
 43. The clinic appointment is focused more on portal details, instead of a personal conversation with my physician 26 25 50
 44. My physician expects me to study my portal information before attending an appointment 26 18 56
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