Table 4 Reasons why respondents are unwilling to share

If you are unwilling to share any clinical information for research purposes, please indicate why (check as many as you want).

▪ Not applicable, I am willing to share this information.

▪ It would make me uncomfortable to share this information.

▪ I am afraid my information will be used by the government.

▪ I don’t trust that my information will be kept confidential.

▪ It may compromise my future health care or insurance.