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Table 2 Patient-reported outcomes at baseline, post-intervention (RealRisks) and at 6 months or after the clinical encounter with their primary care providers

From: Pilot study of decision support tools on breast cancer chemoprevention for high-risk women and healthcare providers in the primary care setting

Patient Outcome Measures Baseline (T0) Post-RealRisks (T1) Post-Clinical Encounter or 6 months (T2) p-value
  (N = 40) (N = 37) (N = 32) T0-T1 T0-T2 T1-T2
Breast Cancer Risk Perception
 Mean difference between perceived and actual lifetime breast cancer risk (SD) 23.67 (24.68) 12.09 (18.13) 20.35 (27.65) 0.01 0.36  
 Accurate breast cancer risk perception, N(%) 15 (39.47) 23 (63.89) 20 (62.50) 0.02 0.02  
Breast cancer knowledge
 Mean number correct (SD) [range, 0–15] 8.00 (1.69) 8.59 (1.38) 7.94 (1.90) 0.10 0.14  
 Adequate knowledge, N (%) 25 (64.10) 30 (81.08) 17 (53.13) 0.13 .32  
Chemoprevention knowledge
 Mean number correct (SD) [range, 0–8] 0.71 (1.46) 3.69 (2.39) 1.94 (1.92) <.01 <.01  
 Adequate knowledge, N (%) 4 (10.53) 18 (50.00) 9 (28.13) < 0.01 0.10  
 Mean breast cancer worry (SD) [range, 1–7] 3.17 (1.80) 3.66 (2.17) 3.30 (2.06) 0.17 0.75  
 Mean self-efficacy in chemoprevention (SD) [range, 0–100] 56 (15.81) 60.22 (15.45)   0.24   
 Mean decision conflict (SD) [range, 0–100]   17.92 (19.51) 43.44 (31.30)    <.01
Decision conflict, N (%) <.01
 Decision implementation (< 25)   23 (63.9) 9 (28.1)    
 Unsure about implementation (25–37.5)   5 (13.9) 5 (15.6)    
 Decision delay (> 37.5)   8 (22.2) 18 (56.3)    
Decision conflict sub-scores (SD) (range, 0–100)
 Informed subscore   9.03 (12.66) 24.48 (19.74)    <.01
 Values clarity subscore   8.33 (15.24) 23.44 (20.02)    <.01
 Support subscore   7.87 (9.33) 17.71 (18.66)    0.01
Chemoprevention intention, N (%)
 Yes   9 (24.3)     
 No   12 (32.4)     
 Unsure   17 (45.9)     
High-risk referrals, N (%)    3 (7.5)    
Chemoprevention uptake, N (%) 0