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Table 4 Parent preferences on child involvement in decision-making for longitudinal research participation

From: Sharing longitudinal, non-biological birth cohort data: a cross-sectional analysis of parent consent preferences

  Level of agreement with child involvement in RESEARCH STUDIES Level of agreement with child involvement in DATA SHARING
Disagree Neutral Agree Disagree Neutral Agree
Tell - My child will be informed that they are part of a research study/their non-biological, de-identified data is being shared. As their parent. I decide the availability of their participation. 36 (10.5) 39 (11.3) 271 (79.0) 26 (7.5) 36 (10.4) 283 (82.1)
Talk - My child will be involved in discussions about their participation in the research study/sharing their non-biological, de-identified data. They can express their opinion and preferences. As their parent, I will decide their participation. 39 (11.4) 51 (14.8) 255 (74.6) 28 (8.2) 37 (10.8) 277 (81.0)
Decide - My child will decide whether or not, and how, they participate in the research study/share their non-biological, de-identified data. 21 (6.1) 19 (5.5) 305 (89.2) 75 (21.8) 46 (13.3) 224 (64.9)