Table 2 Participant consent preferences for secondary use
| Â | Preferred consent model if asked to share data from their original cohort n(%) | Preferred consent model if participating in a new study n(%) |
|---|---|---|
Traditional, Opt-In Consent (Participant asked each time dataset shared) | 75 (21.9) | 78 (22.8) |
Broad, One-Time Consent (Participant is asked permission one-time at beginning for all future uses) | 33 (9.6) | 35 (10.2) |
Broad, Periodic Consent (Participant is asked every two years for permission to continue sharing data) | 33 (9.6) | 25 (7.3) |
Tiered (or Conditional) Consent (Participant identifies allowable uses of their data when granting permission) | 40 (11.7) | 41 (12.0) |
Opt-Out Consent (Participant must declare withdrawal within 3Â months or permission is assumed) | 162 (47.2) | 163 (47.7) |