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Table 3 Stakeholders

From: Factors influencing the development of primary care data collection projects from electronic health records: a systematic review of the literature

 

Governmental services

Academic institutions

Software companies

Private-sector companies

CPRDa

- Medicines and Healthcare products Regulatory Agency (MHRA)

- Department of health via the Health and Social Care Information Centre (HSCIC) [15]

National Institute for Health Research (NIHR)

IMS Health© [180]

Several EHR software systems [15]

THIN

  

In Practice System - Cegedim©, IMS Health© [16]

Q research

 

University of Nottingham and its division of Primary Care [42]

EMIS [42]

Veterans databasea

Veterans Health Administration [152]

 

VISTA, developed by the Veterans Health Administration [152]

Geisinger© Health System project

  

Geisinger© Health system [30]

IBM [162]

General Electric Centricity© electronic medical records research database

  

General Electric© [181]

OCHIN, Inc

US Agency for Healthcare Research and Quality

Funding from the American Recovery and Reinvestment Act

OCHIN SafetyNetWest Practice-Based Research Network, non-profit partnership with academic researchers, governed by a board of directors

EpicCare [22]

Baylor Health Care System (BHCS) and Christiana Care Health

System (CCHS)

Agency for Healthcare Research and Quality, US Department of Health and Human Services

 

One commercial EHR system [166]

University of California Davis Health System electronic medical record system

 

University of California [168]

University of California Davis Health System electronic medical record (Epic, Verona, WI)

CHCI

  

eClinicalWorks [170]

MGPO

 

Massachusetts General Hospital - Radiology Department

associated with the Massachusetts General Physician Organization

Primary Care Operations Improvement Group

 

OpenDoor

 

Columbia University

New York University School of Medicine

Division of General Internal Medicine

Mailman School of Public Health, Columbia University

Primary Care Development Corporation

eClinicalWorks [173]

New York City Primary Care Information Project

Agency for Healthcare Research and Quality

 

eClinicalWorks [21]

IFH

Funding from New York state

Health Resources and Services Administration

 

EpicCare ambulatory EHR [20, 176]

Department of Family medicine - Wisconsin

Wisconsin State Division of Public Health

Department of Family Medicine

University of Wisconsin [178]

 

CPCSSNa and Delphi

Public Health Agency of Canada [24]

- Centre for Studies in Primary Care at Queen’s University [24] and several universities

- College of family physicians [24]

Several EHR software systems [24]

EMRALDa

Ontario Ministry of Health and Long-Term Care, depending on the projects [74]

- Institute for Clinical Evaluative Sciences, a prescribed entity under Ontario’s Personal Health Information Protection Act [70]

- University of Toronto and its Department of Family and Community Medicine

- University of Ottawa

Several EHR software systems: Practice Solutions Software electronic medical record, Oscar [74]

IPCIa

No

Erasmus University Medical Center Rotterdam:

Department of Medical Informatics, Unit of Pharmaco-epidemiology [29], Department of General Practice [29]

No

Nivel-PCD a

Dutch Ministry of Health [41]

- Groningen University, Free University of Amsterdam, Utrecht University and more

- National college of GPs

- National association of GPs [41]

NIVEL owns the Information Communications Technology (ICT) department and has close links with vendors of ICT systems [41]

LINH

Netherlands Institute for Health Services Research (NIVEL)

Dutch Ministry of Health [41]

- IQ healthcare

- National association of GPs

- Dutch College of GPs [41]

 

Julius General Practitioners Network (JGPN) databasea

No

- Julius Center for Health Sciences and Primary Care at Utrecht University Medical Center [39].

- GPs’ Networks at each Dutch University

- Representatives of care groups (groups of GPs from the same area) have a seat in the scientific committee.

Information Communications Technology company (called Proigia) extracts primary care data from GP practices and send them to the database

RNH

 

Department of Family Medicine, subdivision of the Faculty of Health, Medicine and Life Sciences at Maastricht University.

Maastricht University Medical Center.

CAPHRI, school for public health and primary care [89]

 

Transform projecta

Depending on the country

Several universities worldwide (e.g., Crete, Antwerp) [79]

TransHIS

Custodix, Belgium, for central data linkage

SIDIAP

Catalan Institute of Health [31]

- Jordi Gol Primary Care Research Institute

- Girona Research Support Unit [31]

eCap, Catalan software company [31]

IMS Health© [180]

ECRPC Madrid

Madrid Regional Health Authority

  

BIFAPa

6 projects administered and financed by Agencia Española de Medicamentos y Productos Sanitarios (Spanish Agency of Medicines and Medical Devices), a public agency belonging to the Spanish Department of Health [95]

- Institutional collaboration of the regional governments of the nine participant Autonomous Communities

- Department of General Practice

- Learned societies of GPs’ support

- One GP who is an active BIFAP collaborator appointed as member of the BIFAP Scientific Committee.

in-house IT and pharmaco-epidemiologist teams

No private-sector company

GRAPHC

 

- Australian National University

- Australian Primary Health Care Research Institute [182]

 

Canning Division of General Practice

 

Australian General Practice Network

 

MEGPN

Independent accredited not-for-profit organization [27]

 

PCS Clinical Audit Tool© Practice Health Atlas©

Integoa

Flemish government, Department of Health Care [54]

- Department of General Practice of the KU Leuven [54]

- Other universities.

- GPs’ participation in the ethics and scientific committee

- Datasoft, Medidoc

- Careconnect EHR

- No private-sector company involved in data analysis

NIHDI

Public social security institution [23]

 

Extraction module on EHR [23]

Health Search Database / CSD©

  

Cegedim© [77]

Swedestar project

 

- Department of Medical and Health Sciences, University of Linköping,

Unit of Research and Development in Primary Care, Jönköping

- Lindsdals Primary Health Centre [96]

Swedestar software [96]

FIRE

 

- Institute of General Practice of Zurich University [97]

- “SGAM informatics”, a study group of the Swiss Association of GPs [26]

Grhanite extracting tool

LPD network - Cegedim

  

Doc’ware software - Cegedim© [8]

  1. athe contact person gave information on the project governance following our enquiry by email