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Table 27 Additional measures suggested if de-identification may be incomplete.

From: Security and privacy requirements for a multi-institutional cancer research data grid: an interview-based study

Additional Measures for Potentially Incomplete De-identification

Quantify risk prior to establishing repository with biostatistics consultation

Provide test data for human review

Include QA mechanisms in Data Safety Monitoring Plan

Perform periodic random checks to assess completeness

  1. Scenario 2 – Question 7. A total of 3 interviews provided responses. Respondents were IRB directors. Data was aggregated with interview statement as the unit of analysis.