Skip to main content

Table 27 Additional measures suggested if de-identification may be incomplete.

From: Security and privacy requirements for a multi-institutional cancer research data grid: an interview-based study

Additional Measures for Potentially Incomplete De-identification
Quantify risk prior to establishing repository with biostatistics consultation
Provide test data for human review
Include QA mechanisms in Data Safety Monitoring Plan
Perform periodic random checks to assess completeness
  1. Scenario 2 – Question 7. A total of 3 interviews provided responses. Respondents were IRB directors. Data was aggregated with interview statement as the unit of analysis.