Table 3 Framework for consumer portal
Categories | Content | To Cover |
|---|---|---|
About Palliative Care | What is palliative care? | Terminal illness Precious time Maximising opportunities in life FAQ |
| Â | Who provides palliative care? | Health care team Eg. pastoral care, family as the key unit provider |
| Â | How do you access palliative care? | Self referral GP Hospital physician Community services Specialist PC services |
| Â | When does palliative care begin? | When required |
| Â | When can I ask about pain relief and symptom control? | When do you discuss palliative care and supportive issues? |
Navigating the Health Care System | Palliative care and the health care system | Feeling abandoned? Move from the acute serviced orientation Home or Hospital ? |
| Â | Talking to your doctor | Hints and strategies |
| Â | Talking with other health care professionals | Hints and strategies |
| Â | Complementary therapies | Types Benefits autions |
| Â | Unhappy with the health care system? | Patient rights Avenues for mediation |
Receiving palliative care | Planning for the time you have | What we know about dealing with a life limiting diagnosis |
| Â | Managing your symptoms | Fatigue Frustration Pain Difficulty breathing |
| Â | Managing your life | Living with uncertainty Have your affairs in order |
| Â | What to expect when you are dying | Fears, pain, reaction and behaviours of others |
| Â | Creating your memory | Healing old wounds Leaving a message Giving treasures to be treasured |
| Â | What others have done | Stories & Obituaries |
Caring for someone receiving palliative care | Being a caregiver | The role/Rights/Support Resources |
| Â | Understanding your situation | Physical and psychological demands Personal loss & growth Dealing with different coping strategies Need for a break |
| Â | Creating memories | Events/Diary/Photos The stories of other caregivers |
| Â | Obtain important information | Deciding what is important |
| Â | Physical aspects of caring | Bed comfort/Nutrition Medications/Hygiene |
| Â | Recognising and managing symptoms | Fatigue/Pain Lack of appetite or urinary control |
Caring for someone who is receiving palliative care cont'd | When death occurs | What to expect when the one you are caring for is dying Letting go What to do when someone dies Caring for the body after death |