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Table 1 Responses to Pre- and Post-Development Surveys

From: Developing a web-based information resource for palliative care: an action-research inspired approach

  Existing Website New Website
Period of Survey online Oct 2003 – March 2004 May 2006 – March 2007
Responses (n=) 197 166
Health Professionals 132 (67%) 121 (73%)
Caregivers/Patients/Public 63 (32%) 45 (27%)
What information were you looking for on the PCV website? Public:
• To find information that would assist me in my care giving role (15%)
Health Professionals:
• To find information in support of professional practice (79%)
• To find information that would assist patients in their care-giving role (15)
• Clinical aspects of professional practice (13%)
Public & Health Professionals:
• To find resources on palliative care (66%)
Public:
• To understand the health care system better (96%)
• About palliative care services in Victoria (40%)
• About helping someone who has an illness (33%)
• To help the person I care for to receive the best possible treatment (31%)
• To help me deal with my feelings (27%)
• To understand what palliative care is (26%)
• About living with my illness (11%)
• About palliative care services in Australia (11%)
• To help me put my affairs in order (9%)
• To help me receive the best care possible (4%)
Health Professionals:
• Education available in palliative care (50%)
• Symptom Management (37%)
• Advance Care Planning (31%)
• Loss and Grief (25%)
• Talking with clients and their families (23%)
• Palliative care services in Victoria (22%)
• Palliative Care Victoria (21%)
• Death (21%)
• Services available to my clients (21%)
• A website clients and their families could use as a resource (17%)
• The meaning of palliative care (13%)
• Palliative care services in Australia (4%)
Did you find the information you wanted? 128 yes (65%)
68 no (35%)
137 yes/some but no all (82%)
18 no (11%)
Was it easy to find the information? 130 yes (66%)
57 no (29%)
122 yes (74%)
38 no (23%)
Additional information to be included: • Professional Practice
• Grief
• Advance Care Planning
• Volunteering
• Pain
• Jobs
• Ethics
• Home Care
• Contact Details
Health Professionals:
• Courses/Workshops/Conferences
• Scholarships
• Careers
Public:
• List of places to go as a family
• Sings of dying/clinical information
• Volunteering
• Jobs
• Financial entitlements
Comments about the website • the need for better navigation tools,
• the site's limited content,
• the ineffectiveness of the site's search engine, and
• the fact that the site had not been updated.
• Plain, clear and unemotional, but still sensitive – well done.
• Well-mapped out, easy to navigate.