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Table 1 Responses to Pre- and Post-Development Surveys

From: Developing a web-based information resource for palliative care: an action-research inspired approach

 

Existing Website

New Website

Period of Survey online

Oct 2003 – March 2004

May 2006 – March 2007

Responses (n=)

197

166

Health Professionals

132 (67%)

121 (73%)

Caregivers/Patients/Public

63 (32%)

45 (27%)

What information were you looking for on the PCV website?

Public:

• To find information that would assist me in my care giving role (15%)

Health Professionals:

• To find information in support of professional practice (79%)

• To find information that would assist patients in their care-giving role (15)

• Clinical aspects of professional practice (13%)

Public & Health Professionals:

• To find resources on palliative care (66%)

Public:

• To understand the health care system better (96%)

• About palliative care services in Victoria (40%)

• About helping someone who has an illness (33%)

• To help the person I care for to receive the best possible treatment (31%)

• To help me deal with my feelings (27%)

• To understand what palliative care is (26%)

• About living with my illness (11%)

• About palliative care services in Australia (11%)

• To help me put my affairs in order (9%)

• To help me receive the best care possible (4%)

Health Professionals:

• Education available in palliative care (50%)

• Symptom Management (37%)

• Advance Care Planning (31%)

• Loss and Grief (25%)

• Talking with clients and their families (23%)

• Palliative care services in Victoria (22%)

• Palliative Care Victoria (21%)

• Death (21%)

• Services available to my clients (21%)

• A website clients and their families could use as a resource (17%)

• The meaning of palliative care (13%)

• Palliative care services in Australia (4%)

Did you find the information you wanted?

128 yes (65%)

68 no (35%)

137 yes/some but no all (82%)

18 no (11%)

Was it easy to find the information?

130 yes (66%)

57 no (29%)

122 yes (74%)

38 no (23%)

Additional information to be included:

• Professional Practice

• Grief

• Advance Care Planning

• Volunteering

• Pain

• Jobs

• Ethics

• Home Care

• Contact Details

Health Professionals:

• Courses/Workshops/Conferences

• Scholarships

• Careers

Public:

• List of places to go as a family

• Sings of dying/clinical information

• Volunteering

• Jobs

• Financial entitlements

Comments about the website

• the need for better navigation tools,

• the site's limited content,

• the ineffectiveness of the site's search engine, and

• the fact that the site had not been updated.

• Plain, clear and unemotional, but still sensitive – well done.

• Well-mapped out, easy to navigate.