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Table 7 PAS Questionnaire Contents

From: HERALD (Health Economics using Routine Anonymised Linked Data)

Questionnaire

(Time Interval)

Summary of Information

Baseline

(0)

Co-morbidities, family history, age of diagnosis and first symptoms, disease activity [11], function [12], Quality of life (EQ-5D) [13], and visits to health professionals

Not at work

(3 Months)

Previous occupation, activity impairment questionnaire

At work

(3 months)

Work questionnaire, including information about current and previous occupation, activity impairment and work limitations questionnaire (WLQ) [14], work productivity and activity impairment questionnaire (WPAI-SHP) [15, 16]

AS costs

(9 months)

AS Cost questionnaire including detailed patient-level information about visits to health care facilities, professionals, AS related pathology and other tests, other conditions, medications, costs of various aspects of treatment and disability

Exercise and Fatigue

(15 months)

International Physical Activity Questionnaire (IPAQ) [17], disease activity, function, Behavioural Regulation in Exercise Questionnaire (BREQ-2) [18], Pittsburgh Sleep Quality Index [19], and the Hospital Anxiety and Depression Scale [20, 21])

Medication

(0,3,6,9,12,15 Months)

Medication

  1. Legend: AS patients in the PAS cohort were asked to consent to completing questionnaires either online if they have internet access, or by post. A website has been developed to give access to the questionnaires http://www.ashealth.co.uk/