Table 2 Principles of OCAP [64] and study initiatives

Ownership: An Aboriginal community or group owns information collectively in the same way that an individual owns their personal information.

Minwaashin Lodge is recognised as a full research partner by the University of Ottawa Research Ethics Board.

Control: Aboriginal communities/representative bodies are within their rights in seeking to control all aspects of research and information management processes that impact them.

Key stakeholders and Minwaashin Lodge have been included during development of the three-stage study protocol, and will be co-producers of knowledge during data collection, interpretation, and dissemination.

Access: The right of Aboriginal Peoples to information and data about themselves and their communities, as well as a right to manage and make decisions regarding access to their collective information.

Collected data is to be stored in a mutually agreed upon way to ensure the privacy and confidentiality of participants; the data sets will be accessible by representatives of the Minwaashin Lodge.

Possession: Possession, or stewardship, of data is a mechanism by which ownership can be asserted and protected.

The primary investigator and Minwaashin Lodge act in a collaborative manner e.g. creating opportunities for: meetings, informed questions about the study procedures, on-going email and in-person contact for dialogue. Data will be disseminated in collaboration with Minwaashin Lodge and to stakeholders identified and/or approved by Minwaashin Lodge.