Subject | Questionnaire | Inclusion | T1 | Disease progression | Interview | T2 | T3 | |
---|---|---|---|---|---|---|---|---|
Sociodemographic characteristics | Â | Â | x | Â | Â | Â | Â | |
Previous chemotherapy | Â | Â | x | Â | Â | Â | Â | |
OUTCOME MEASURES & PREDICTORS OF INFORMATION DESIRE | Â | Â | Â | Â | Â | Â | ||
Well-being | General Health | Â | Â | x | Â | Â | x | x |
 | Anxiety & Depression | Hospital Anxiety and Depression Scale |  | x |  |  | x | x |
 | Cancer Worries | Adapted Lerman's Cancer Worry Scale |  | x |  |  | x | x |
 | Health-related quality of life | EORTC QLQ-C15 PAL |  | x |  |  | x | x |
Coping | Helpless/Hopeless, Avoidance, Fighting Spirit | Mental Adjustment to Cancer Scale | Â | x | Â | Â | x | x |
 | Decision Styles | Michigan Assessment of Decision Style |  | x |  |  |  |  |
 | Participation Preferences | Problem-Solving Decision-Making Scale |  | x |  |  |  |  |
 | Perceived participation | Problem-Solving Decision-Making Scale |  |  |  |  | x | x |
 | Perceived involvement | Whelan |  |  |  |  | x | x |
 | Death avoidance | Death Avoidance Scale |  | x |  |  |  |  |
Information | Preference for information | Â | Â | x | Â | Â | Â | Â |
 | Amount of information |  |  | x |  |  | x | x |
 | Information from oncologist |  |  |  |  |  | x |  |
 | Undesired information |  |  |  |  |  | x |  |
 | Information desire |  |  |  |  | x |  |  |
 | Satisfaction with quality of information |  |  |  |  |  | x | x |
 | Balanced presentation of information |  |  |  |  |  | x |  |
 | Evaluation of information |  |  |  |  |  | x | x |
 | Numeracy | Subjective Numeracy Scale |  | x |  |  |  |  |
Knowledge | General subjective knowledge | Â | Â | x | Â | Â | Â | Â |
 | Treatment subjective knowledge |  |  |  |  |  | x |  |
 | Objective knowledge |  |  |  |  |  | x |  |
 | Subjective risk |  |  |  |  |  | x |  |
 | Objective risk |  |  |  |  |  | x |  |
Decision | Decision satisfaction-uncertainty | Decision evaluation scale | Â | Â | Â | Â | x | x |
 | Decision control | Decision evaluation scale |  |  |  |  | x | x |
 | Weighing pros and cons | Decision evaluation scale |  |  |  |  | x | x |
 | Treatment choice |  |  |  |  | x | x |  |
 | Strength of treatment preference |  |  |  |  | x | x |  |
Treatment attitudes | Valuations | Â | Â | Â | Â | Â | x | x |
 | Treatment satisfaction |  |  |  |  |  |  | x |
 | Preferences for Quality/Quantity of Life | QQ Questionnaire |  | x |  |  |  |  |
PHYSICIAN'S QUESTIONS | Â | Â | Â | Â | Â | Â | ||
Medical history | Tumour and treatment characteristics | Â | x | Â | Â | Â | Â | Â |
Substitute judgment | Substitute judgment of information desire | Â | x | Â | Â | Â | Â | Â |
Prognosis | Estimate of survival | Â | Â | Â | x | Â | Â | Â |