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Table 1 Outcome measures

From: Assessing the information desire of patients with advanced cancer by providing information with a decision aid, which is evaluated in a randomized trial: a study protocol

Subject

Questionnaire

Inclusion

T1

Disease progression

Interview

T2

T3

Sociodemographic characteristics

  

x

    

Previous chemotherapy

  

x

    

OUTCOME MEASURES & PREDICTORS OF INFORMATION DESIRE

      

Well-being

General Health

  

x

  

x

x

 

Anxiety & Depression

Hospital Anxiety and Depression Scale

 

x

  

x

x

 

Cancer Worries

Adapted Lerman's Cancer Worry Scale

 

x

  

x

x

 

Health-related quality of life

EORTC QLQ-C15 PAL

 

x

  

x

x

Coping

Helpless/Hopeless, Avoidance, Fighting Spirit

Mental Adjustment to Cancer Scale

 

x

  

x

x

 

Decision Styles

Michigan Assessment of Decision Style

 

x

    
 

Participation Preferences

Problem-Solving Decision-Making Scale

 

x

    
 

Perceived participation

Problem-Solving Decision-Making Scale

    

x

x

 

Perceived involvement

Whelan

    

x

x

 

Death avoidance

Death Avoidance Scale

 

x

    

Information

Preference for information

  

x

    
 

Amount of information

  

x

  

x

x

 

Information from oncologist

     

x

 
 

Undesired information

     

x

 
 

Information desire

    

x

  
 

Satisfaction with quality of information

     

x

x

 

Balanced presentation of information

     

x

 
 

Evaluation of information

     

x

x

 

Numeracy

Subjective Numeracy Scale

 

x

    

Knowledge

General subjective knowledge

  

x

    
 

Treatment subjective knowledge

     

x

 
 

Objective knowledge

     

x

 
 

Subjective risk

     

x

 
 

Objective risk

     

x

 

Decision

Decision satisfaction-uncertainty

Decision evaluation scale

    

x

x

 

Decision control

Decision evaluation scale

    

x

x

 

Weighing pros and cons

Decision evaluation scale

    

x

x

 

Treatment choice

    

x

x

 
 

Strength of treatment preference

    

x

x

 

Treatment attitudes

Valuations

     

x

x

 

Treatment satisfaction

      

x

 

Preferences for Quality/Quantity of Life

QQ Questionnaire

 

x

    

PHYSICIAN'S QUESTIONS

      

Medical history

Tumour and treatment characteristics

 

x

     

Substitute judgment

Substitute judgment of information desire

 

x

     

Prognosis

Estimate of survival

   

x

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