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Table 2 Data collection stages

From: Protocol for population testing of an Internet-based Personalised Decision Support system for colorectal cancer screening

Phase 1 Eligibility Questionnaire, self-completed on paper. Reminder sent 2 weeks after initial mailing.

Questions addressing the inclusion and exclusion criteria (Additional file 1)

Phase 2.1 Baseline Survey, self-completed on line or on paper as allocated. Reminder sent 2 weeks after initial mailing.

Demographic characteristics

   Age, sex, education, country of birth, marital status, employment status

PAPM stage

   Decision stage for screening assessed by PAPM stage (never heard of FOBT, aware but not engaged, decided not to act, undecided, decided to act)

PHM constructs

   Scores assessed on salience and coherence, cancer worries, response efficacy, social influence, perceived susceptibility [18]

Self efficacy

   Score assessed on confidence to use an FOBT at home

Faecal aversion

   Score assessed on distaste or embarrassment toward handling of faeces

Phase 2.2 Invitation to screen, including FOBT. Sent 2-4 weeks after completion of baseline survey with reminder sent 6 weeks after initial invitation.

Receipt or non-receipt of completed FOBT recorded by the Bowel Health Service (BHS), Repatriation General Hospital

   Return of kit

   Date of return of kit

   Number of participants who contact the 'help line' provided as part of the standard BHS protocol

Phase 3.1 Endpoint Survey, self-completed on line or on paper as allocated. Administered 1-2 weeks following receipt of completed FOBT, or 12 weeks following invitation to screen. Reminder sent 2 weeks after initial mailing.

PAPM stage

PHM construct scores

Self efficacy score

Faecal aversion score

Participation in any other bowel cancer screening activity since entry into trial

Familial history of bowel cancer

Usefulness of the educational material

Satisfaction with content and ease of navigation (PDS arms)

Decisional satisfaction and conflict. Scores assessed by the Decisional Conflict scale [32]

Level of motivation to screen. Scores assessed by the Treatment Self-Regulation Questionnaire [33]

Phase 3.2 Qualitative data, obtained following Endpoint Survey from telephone interviews with a subset of participants in each arm.

Reasons for choosing to participate or not in screening

Usefulness of materials

How the interventions might be improved